Erika -- I was thrilled to find out you and Jay were pregnant ... and saddened to hear that there were issues. I want to let you know that I'm keeping up on your little monkey's progress ... and wishing you guy the best. Take care :)
karen
karen [email] November 15, 2005 05:32 PM
Hi! My name is Sheila and I have a 2 1/2 year old little twin boy with HLHS and he is now 5 days post Fontan. Although he has had 5 open heart surgeries, he is not delayed and he is the most enjoyable, spirited, loving child ever! We found out at 16 weeks gestation and he had his Norwood at 6 days old. He came home 10 days later without any feeding issues. I even nursed him for 4 months. I want to give you lots of home and encourage you to pray SPECIFICALLY for things. God answers prayers... Colby is a testament to that!
Praying for you!
Sheila Elliott
www.caringbridge.org/tx/colby
You guys have been on our minds, in our thoughts and prayers daily. Trace knows that we're only engaged because you two are pregnant, and I hate losing wagers. Ok poor joke. We were thinking about you, Jay, and Samson on Friday and hope that all is well.
Greg & Tracy [email] November 6, 2005 10:02 AM
you three were in my thoughts all day today .i know in my heart
everything is going to be ok. please check out the site wendy told you
about .i was on it today very encouraging.
love you all mary
Part of my message was erased. Sorry!
Ella's mom, Laura found out that Ella had HLHS after she was born.
She has a webpage that I think you both would learn from. Visit
www.carepages.com
(sign in information on the message below)
Sorry don't know what happened.
Jason and Erika,
I am a frind of Mary's and a dear friend of mine has a 4 month
old,Ella, who has HLHS as well. This week Ellas has just had her second
surgery and all is very well. Recently a news station came out to video
Ella to make people more aware of HLHS. While the producer was there
thet said that there is now actually surgery in utero that kept a child
from being born with HLHS. Elaa's mom
username:wendymcneil
password:eeyore
then click on ellagraebullard
If you create your own sign in you will just need to know the name of
the page which is ellagraebullard(no spaces). I want you both to know
how happy and wonderful Ella is. I know you must be scared, but Samson
will have many beautiful days ahead. Congratulations!
Wendy McNeil
wendymcneil@ec.rr.com
Just checking in to say my thoughts are with you guys on this big appointment day. I hope all goes well.
amberlyn [email] November 4, 2005 09:42 AM
hi! i work with your mom, whom i love by the way. we have shared
lots of prayers for you,jay & baby samson. i will tell you what i
told marie--if god brought you to it- he will bring you through it. i
really believe that with all my heart. i went through joy & the
heartache 3weeks after my son was born. my mom his grandma passed away
on 8-27. my son was born end of july. he gave me the stenght to get
through my moms death. and god gave me my son for that reason.to be my
strength. i say daily prayers for you & your family. i cannot wait
to see samson in the flesh. he is a very loved baby already. great idea
with the website!
take care.. good luck tommorrow!
Roe
Dear Erika, Jay & Sammy:
Lots of people are pulling for you guys. Keep the faith.
Love you,
Shar
Erika & Jason,
I just wanted to say that my thoughts are with your family, and I wish you the best.
ERIKA & JAY,
OUR THOUGHTS AND PRAYERS ARE WITH YOU ALL. WHAT A LUCKY BABY SAMSON IS TO HAVE SUCH A LOVING FAMILY. BARBARA & JOHN
Hi,
Please excuse my English, which isn't perfect, as I'm a teenager from Poland. I've been reading you for a good few months now, though I've never left any comments, but I was very happy to hear that you're pregnant, and now a bit worried about the HLHS, but I'm sure that everything will be allright and I'm keeping my fingers crossed for Sammy :)
Kiah [email] November 1, 2005 05:30 AM
Erika & Jay,
For starters congratulations on joining the ranks of parenthood -
you will love it! We were so excited to see you website and look
forward to futute updates. You are in our prayers and thoughts and
always remember God gives to each of us only what we can handle. Samson
is already blessed to have you as parents. I hope to see you soon.
Love,
Cousin Megan
Hi Erika & Jay,
I already have you in my prayers and have asked my weekly Bible Study class to keep you & little Monkey in their prayers. Stay strong, stay positive and I can't wait to see pics of Samson when he's born. Congrats on being pregnant cuz.
Kerri Cicola [email] October 31, 2005 12:49 PM
my thoughts and prayers are with you and samson. sending loads of love your way. you have so many people rootin for you both, i imagine that alone will carry you through this safe and sound.
kat [email] October 31, 2005 11:12 AM
Erika & Jason,
Hello cousin!! Richard and I are thinking of you and sending all the
positive and healing light possible. We live so close I think we should
take advantage of that and get together. I would love to see you and
your 'pregnant Glow'. I will give you a call this week. We love you!
Love,
Stacy, Richard & Olivia
What a lucky little monkey! This site is a great way to share your journey with others. Always remember there is no greater or stronger gift than your love.
Heather [email] October 31, 2005 09:20 AM
Dear Erika & Jason
I pray for Samson and your family everyday, I'm not sure when Samson
will be born in February, but he will be the "Sweetest", "Cutest"
little Valentine for all!!! Love Linda J
Erika & Jason,
Hi, I was so suprised to hear of the heart condition that the baby has.
I wasn't sure how they diagnosed it, but after reading your web site I
understand now. I am sure that with todays technology they will be able
to help Samson so that he can enjoy all the love that his wonderful
family has to give. You and Jason are very strong and I hope everything
works out for you and Baby Samson. I can't wait to see pictures of him.
I will be looking at your web site often to see his progress. Our
prayers are with all of you.
Love,
Cousin Eileen
Eileen Baltrus [email] October 31, 2005 08:51 AM
I am a memeber of the MOD/SHARE and happen to see your site information. I just want to send along my heartfelt prayers and love for baby Samson, and you all. Please know we really do care! He looks so cute already! It must be such a difficult time for you and your family, and I think this site is a wonderful idea. There is power in prayer! BLessing's & hug's, Mary Jo
Mary Jo Dion [email] October 31, 2005 06:58 AM
Erika & Jason,
God hand picked you for Samson because he needed wonderful strong parents to care for such a special baby.
I've seen this procedure on Discovery Health... if you haven't seen it yet, try to. It is very educational. Love you all.
Your Cousin,
Michelle
Our prayers and thoughts are with you always. Baby Samson is so
fortunate to have such a loving family. We think of your entire family
all the time. God is with you all!
Love,
Lauren & Bob
Hi Erika and Jason,
We've been involved with the "happenings" through Miss Marie. I'm
thinking that there is more to this blessing being given to you. Just
with this site, and the journals you've been writing, shows what a
strong person you are. You and Jason will get Samson through this, heal
him, and very possibly it will be a future cause for you to help others
who will not only go through similar diagnosis as Samson, but will also
help doctors to become more sensitive to what they put parents through.
My niece had a similar experience when she was expecting her first
child. Knowing nothing of what to expect, she was called on Christmas
Eve to come into the office the day after Christmas, her tests weren't
good. She and the rest of the family were so depressed that holiday,
well, let me say I kinda of know how you felt. To make a long story
short, she was told the baby may have spinal bifida and she should
probably abort. She had more tests, nothing would show one way or the
other. She decided to carry full term and now has a fully normal no
problem seven year old who never had a problem. Never give up. Deal
with what you can, but you can always deal with what you get, it's the
anxiety that gives you doubts. You're both strong, and you'll get
through it. Take each day one at a time, enjoy your pregnancy, you know
he's safe for that time, you know he's growing and moving, then when
he's born, your bond will get you through even the toughest days.
All our Love and thoughts,
Denise and Richie
sending positive thoughts to you and little samson.
this is a great resource for people going through the same things you
are. leave it to you to find a way to help people even when you are
frightened.
samson is lucky to have a family like you.
I have been praying for you and your little boy everyday. I know
that prayer and positive thoughts are the best medicine anyone can
receive, and you certainly have that.
I know that Samson is going to be just fine and I'm looking forward to meeting my great-nephew.
Love,
Aunt Elizabeth
I love the site idea. It's so beautiful. Samson is so lucky to have a Mom and Dad that care so much and are dedicated to him:)
I pray for you all everyday..especially my soon to be little nephew. I
can't wait to meet him. I already have his little face pictured in my
head;)
PS...he looks like Jay.
Leave it to you Erika to always find the positive in life. It's just one of many qualities that makes you shine. I wish you and Jay the best of luck on this journey. Your little monkey is lucky to have you for his parents.
Daisyhead [email] October 30, 2005 05:21 PM
Love your site, as others have said. Thanks for visiting Marcus at his. He is a true blessing, albeit a difficult one?? I'm sure your little monkey will be worth it all, as well. If you ever need anything or just to talk, let me know. I remember what it was like to know ahead of time as we found out at 22 weeks gestation after having two healthy boys. Stay in touch!
Shari [email] October 30, 2005 02:37 PM
It is so YOU to turn this into an opportunity to teach and share.
You are a born teacher you know! This is an absolutely fantastic site
and a positive and empowering outlet for you and others who need
encouragement and information. Its also a wonderful way for all those
who are praying for Samson to keep up with the latest info on the
little monkey. Great Job.We are proud of you as always!
Love you three lots,
Mom and Dad....aka Grannie and Gramps
Wonderful idea! This site will be helpful to not just other parents
but to you as well. I'll be coming back and check on your little monkey
for sure.
*keep smiling*
Awesome!! I'm in love with the layout: i love the colors and the monkey-themed page!
You're amazing!!! That site is a great idea. It'll probably be helpful to tons of parents.
Sending good vibes your way. You're in my prayers!!
Tons of
Ness [email] October 30, 2005 01:10 AM
:O)
What a wonderful idea.
You are a lot stronger and positive than you realize!
Great Idea! As always, lots of love and light headed your way! I'm hoping for wonderful things for you all... :)
Firebrand [email] October 29, 2005 08:52 PM
This new website is such an awesome idea. I've been reading you for years, and look forward to reading BabySamson now too! I wish all 3 of you the very best :)
Nora [email] October 29, 2005 08:47 PM
You continue to impress me on a daily basis. This is a wonderful outlet and informational site.
Fran [email] October 29, 2005 07:13 PM
We are really impressed - this is a great way to keep everyone informed and to just sound off. We send strong and warm thoughts today and always.
Alyson and Rob [email] October 29, 2005 06:58 PM
This is a WONDERFUL thing to do. I love the monkey theme. He's a lucky kid to have a Mom and Dad like you and Jay. Stay strong.
Lindsay [email] October 29, 2005 05:08 PM
This is beautiful! Such a positive way to await the birth of Samson!
Bev [email] October 29, 2005 05:01 PM
What a great site! I'll be checking in ALL the time-I can't wait to "meet" Samson!
allie [email] October 29, 2005 04:50 PM
List | Stats | Join|
This Hope for HLHS site belongs to Erika, Jason & Samson
Thank you so much for this beautiful website. My husband and I just found out our little boy to be born in September has HLHS. You give us hope that we can only imagine we can share the joy with our little boy. Thinking of you.
Posted by: Molly | website | May 24, 2010 1:54 PM
Thanks so much for your blog. Our son Tyson has HRHS (right ventricle) as well as 3 other defects, and ASD, and VSD.
Norwood surgery at 13 days old, Glen at 5 1/2 months, awaiting Fontan.
Doing GREAT! Almost 25 lbs at 13 months old!!! Crawling, pulling to stand, cruising around furniture, not walking yet but getting closer!
Check out his story at www.tysonmatthewkottelenberg@blogspot.com
Posted by: Melissa | website | January 2, 2010 4:05 PM
I found you through Twitter. We have a CHD daughter, coming up on her 2nd valve repair. Blessings to you and your brave son. These kids have such amazing strength.
Posted by: Charity | website | October 1, 2009 4:15 PM
Julie filled me in on Sammy's condition. You can add Aidan Doherty's family to your list of well-wishers and supporters. I would love to bring by a hot meal in the next week with Aidan in tow when you're ready for visitors.
Posted by: Kirsten Doherty | website | September 30, 2009 4:02 PM
God bless all of you. We have been praying and thinking about you all. You are all our heroes. You are all so strong. Sammy is such a beautiful boy. I told Josh, my 4 year old and Maya, my 3 year old about Sammy and we have been praying for him and all of you. Oh, and Josh wants to have a playdate soon! We wish you for you peace and calm.
All our love,
Jess, Steve, Josh, Maya
Posted by: Jessica Zufall | website | September 28, 2009 10:50 PM
Best of everything to your whole family. God bless you and I wish you strength and hope!
Posted by: Amanda Pidgeon Serna | website | September 28, 2009 10:37 PM
Much love and prayers sent to Sammy from Nora's Grandma Randy and Grandpa Jeff
Posted by: Randy Susan Meyers | website | September 28, 2009 11:17 AM
SAW YOU ON TWITTER, SEE YOU FOUND US- PROBABLY CAUSE OF THE HLHS DX. NICE TO SEE A CHILD WHO HAD THE FONTAN AND WENT HOME A WEEK LATER! MOST WE HAVE MET SPEND A MONTH IN HOSP. WE WILL BE HAVING OURS IN AUG. 09. NICE TO MEET YOU. I WISH YOU THE BEST!
Posted by: Joy Kimble | website | May 26, 2009 2:31 AM
You posted a comment to my husbands blog a couple of weeks ago. I don't know how you found us so quickly.
Thank you for your support.
Thank you also for puitting your story in writing as well. It is a great help and encoureagement to us as I am sure you are aware.
I also appreciate your categorization on your site. Many of the other blogs we are reading are only broke down by date. This is not very helpful over the long run when the posts span over a couple of years.
Thanks again. We are moving all HLHS posts over to thewilsonheart.com feel free to follow us there!
Posted by: Erin Wilson | website | March 14, 2009 11:55 PM
hey, i was looking on the internet and along came your site, iam a mother of 5 from holland and my joungest son has hlhs, he is now 3 jears old and doing great, i want to wish you al the best and good health for samson,
greatings from holland lian
Posted by: lian | website | September 23, 2008 8:09 AM
Thank you very very much for you blog... I am 30 weeks with little Leighton and he will be born with HLHS and your blog is so positive. My husband only lets me read certain ones and this one was his top pick. My hopes are lifted by stories like yours... I still cry a few times a week, but I feel stronger and stronger everyday. Thank you for the Hope! I will be praying for you.
Posted by: Laine Harper | website | August 12, 2008 11:32 PM
Thank you so much, Erika, for posting to my blog and letting me know about this site. It's so well done, and your little boy is SO precious and beautiful!
I am inspired to start one, too, partly to keep family and friends up to date, and partly for my own sanity. =)
I will be reading ...
Posted by: hsofia | website | August 3, 2008 12:54 PM
Hey! I have a 12 year old son named Cory, with HLHS. I just thought I'd say that he is doing very well. Hang in there all of you!! God is with you!!
Posted by: bridget | website | July 24, 2008 1:45 PM
Hi, couldn't get the "contact" button to work, so I thought I'd let you know I'd love to be on the HLHS list. My daughter, Mary Clare was born June 27, 2007 with HLHS. She is post Norwood and Glen and is doing wonderfully! I'd love to be available to other families/parents going through it all! Thanks for a great website. Love, Kerri
Posted by: Kerri Pennington | website | July 12, 2008 2:21 PM
Hello Erika, We have spoke before. My daughter Emerson is now 3 months old and we have gone through the Norwood and she is home. She will have the Glenn in September or October. I just wanted to check on Samson and I am so happy to see that he has had a successful Fontan! Congrats to you all. I am so happy for you. Please check out our site sometime. It is
www.emyfayesheart.
wetpaint.com
Thanks again for helping me out when Emy was first diagnosed with HLHS. You all will continue to receive our positive thoughts and prayers.
Sara Mayes
Posted by: Sara Mayes | website | July 3, 2008 8:49 PM
Thank you for commenting on my daughter Chloe's page. Word of encouragement are always welcome. We go in for her pre-fontan cath tomorrow so we are very nervous. I'm glad things are going well with Sammy and your family is in our prayers.
Posted by: Alicia Clayton | website | June 18, 2008 2:25 PM
Sammy is in my prayers. Deb Gere has been giving me the updates. Glad to hear everything is going well as expected.
Posted by: Wendy Abetz | website | June 11, 2008 8:44 AM
Sammy is in my prayers. Deb Gere has been giving me the updates. Glad to hear everything is going well as expected.
Posted by: Wendy Abetz | website | June 11, 2008 8:43 AM
What a handsome young man :)
I am back in the laptop world and with school ending, I might have 'free' time....
I hope things are going well:)
Kim
Posted by: Kim Gray | website | June 11, 2008 7:53 AM
I came to your website via Katie Manning's blog. Vickie is a dear friend of mine. I am so thankful they found Sammy's blog! You are an inspiration. Thank you for being "out there" for other HLHS families... and that Sammy is beautiful...now I have 2 blogs to follow. Wishing your family health, faith, & love!
Posted by: Liz | website | June 5, 2008 8:35 AM
I got Sammy's website address from Bridgette's CarePage. I just wanted to let you know that Sammy and his family are in my thoughts and prayers. I have what I call a lil prayer group, where I pray for 5 other children and their families, and now I am including Sammy and his family.
Laura
Posted by: Laura Boehm | website | June 1, 2008 10:56 PM
You guys and Sammy are in our prayers! He is an amazing little guy.
Posted by: Brad and Kelli White | website | May 28, 2008 8:27 AM
Just checking in again and pleased to see that you are doing as well as can be expected. Great to see that you have done a "poop" that is very important too. Keep up the good work much love to all from Australia xxoo
Posted by: Heather | website | May 27, 2008 5:39 PM
Much love and positive vibes coming to you from Australia. Thinking of you all. XXXX
Posted by: Heather | website | May 23, 2008 6:20 PM
Hugs and prayers to all of you. Sammy is an incredible little boy. And he has 2 very incredible parents.
Love to you all
Posted by: Stacy | website | May 21, 2008 6:14 PM
Jason,
I've just heard the great news. Your family is in my thoughts and prayers.
Joni
Posted by: Joni | website | May 21, 2008 4:21 PM
Jason,
My prayers are out to you and your family.
Joni
Posted by: Joni | website | May 21, 2008 4:04 PM
I just wanted to say thank your for the prayers for Bridgette, we are sending lots of prayers out for Samson to. I hope we can both come on here soon with good news and the surgeries completed.
Blessings and prayes, Tina
Posted by: Tina | website | May 21, 2008 1:52 PM
I just wanted to say thank your for the prayers for Bridgette, we are sending lots of prayers out for Samson to. I hope we can both come on here soon with good news and the surgeries completed.
Blessings and prayes, Tina
Posted by: Tina | website | May 21, 2008 1:52 PM
Jason - My family is praying for Samson and you and Erika right now!
Bill Betts
Posted by: bill betts | website | May 21, 2008 11:15 AM
Your family is in our thoughts and prayers. God bless you, your husband and your beautiful boy, Sammy. Take care.
Hugs,
Michelle
Posted by: Michelle Strottner | website | May 21, 2008 10:12 AM
Colin, Patrick, and I are sending positive thoughts from the deep south (we're traveling to San Antonio tomorrow). We'll be looking forward to reading updates!
Posted by: Splolly | website | May 20, 2008 11:36 PM
Hi just to let you know, you are all in our prayers,may God give you the strength and peace as you all go through this difficult time, jacky
Posted by: jacky (Hunter nurse) | website | May 20, 2008 11:12 AM
don't worry miss everything will be ok.
just keep your head up and remember that all your students love you
Posted by: mike koumantzelis | website | May 20, 2008 9:41 AM
Hi! I just wanted to send out my prayers to your family and especially Samson as you go through the Fontan. Bridgette will be having her Fontan the same day at 7:30 am. I will be sure to keep you all in my thoughts and I will be checking your page afterwards when I update Bridgette's page.
Heart Hugs,
Tina
Posted by: Tina (Bridgette's mom) | website | May 19, 2008 12:51 PM
Thinking of you and your family as you prepare for the last surgery. Our daughter was diagnosed on April 23, 2008. We are due in Sept. Your site has given me strength. You are all in our prayers.
Posted by: Jenna | website | May 19, 2008 12:38 PM
My brother, Brooks, has a link to your website on his blog about his newly diagnosed baby-on-the-way with HLHS. I saw that your little man has a surgery this week, and just wanted to let you know that there are people who do not even know you who are praying for your family and little Samson. As a mother of a hyper little 2-year old boy myself, I cannot imagine the stress and worry your family has been through. Please know that I am keeping you in my thoughts and prayers. I look forward to checking back in to your website to see how Samson's recovery is going!
Posted by: Kristy Baughier | website | May 19, 2008 12:31 PM
HI! Just wanted to let you know our Fontan is scheduled for May 30th,2008. Hopefully it will be of some comfort to know there are other families who know your fear and pain. I wish your son all of the best I will be thinking of you.
Posted by: Jacquelyn | website | May 10, 2008 11:45 AM
I just wanted to say "hello". My son Ethan has HLHS and turns 1 tomorrow! We were not diagnosed in utero and were shocked and devestated when we were told. I think that this site is a great way to link families dealing with such big issues. I hope that Sammy continues to do well.
---Allison (ethanjamescurtis.blogspot.com)
Posted by: Allison | website | April 30, 2008 6:11 PM
My son Ryker was born with HLHS and lived 7 weeks. I found your site from another heart baby's blog site. Sammy is such a cute name. Good luck and I pray things will continue to go well!
Emily Gourley
Posted by: Emily Gourley | website | April 20, 2008 2:59 PM
My prayers are with you!
Whats the deal with the Bertucci"s coupons ?
Posted by: Mandy (Masson) Whittaker | website | April 14, 2008 6:39 PM
Sammy, please know that someone your Mom helped is praying for you to get thru this and have a forever healthy life!!
Posted by: Alan Flood | website | April 14, 2008 5:05 PM
I am the proud mom of Matilda, an energetic
5 1/2 year old who also has HLHS. (I believe you had contacted me about her site a year or so back.) I came across your son's site and am thrilled he is doing so well. Thank you for sharing your inspirational story about your adorable and courageous son, Samson. Offering hope is a gift to so many dealing with the unknowns of this journey. Blessings to you all!
Posted by: Jodi Roventine | website | March 17, 2008 4:54 PM
Hi Erika, thank you so much for your comment on my blog. What a small world - Avery is also at Children's, and my sister Cheryl Toole, Avery's mom, is a nurse in the neonatal intensive care unit there. Avery's HLHS was detected the day after she was born, at Brigham and Women's, when they heard an unusual heart murmur. Like your Samson, Avery is super-high energy and a miracle to us everyday. I am sure my sister would be happy to talk to you when you're there for the next procedure!!
Posted by: Kerri Posson | website | March 14, 2008 3:59 PM
Wow! Is Sammy a cutie! from the mom of an almost 9 year old HLHSer.
Posted by: Martha Hauber | website | March 13, 2008 2:36 PM
Just by reading this blog you can tell Erika is an amazing mom and Sammy is so lucky. He is precious!
I am 26 weeks pregnant with a little boy who was diagnosed with HLHS and I emailed Erika to thank her for her blog and she inspiried me to create one also, she responded and offerred to answer any questions I had. It means alot to be able to talk to other people who have went through it and are going through it.
Thanks again for the support!
Posted by: Melissa Hardy | website | March 12, 2008 12:51 PM
We are 24 weeks pregnant and just diagnosed with many congenital heart defects. We are looking for uplifting info. regarding all the surgeries in our future. Best of luck with the fontan, we'll be looking to see how it goes.
Posted by: Alecia Palmer | website | March 2, 2008 8:36 PM
hi i gave birth to a beautiful baby boy 9 weeks ago he was born with hlhs he got his first operation when he was four days old unfortunly after the operations he developed blood clots and as weeks past he got worse sadly he did when he was 6 weeks old and has been so hard for me and my partner i hope all goes well for kids that are recovery and i wish u nothing but the best for the years to come love dawna
Posted by: baby jamie | website | February 17, 2008 2:27 AM
You are a wonderful advocate for your child. We are with you always.
Heart Hugs,
Melissa and Nicholas
Posted by: Melissa Lemieux | website | February 13, 2008 11:20 AM
Just wanted to tell you that I went back and read your posts about Sammy's Glenn. Julianne is going for hers on 2/21 and reading a first hand account has been helpful in knowing what is likely to come. Thank you!
Posted by: Jessica Caperton | website | February 9, 2008 11:08 PM
HI there,
I used to work in paediatric cardiology at Vic.
I am a huge fan of Hunter & his family. When I read about Sammy...I just wanted to stop in and let you know that I have added him and your family to my prayers.
God Bless.
K
Posted by: Keri | website | February 7, 2008 8:06 PM
Sammy's an amazing little boy and you guys are fantastic parents!
Wishing you best of luck, may all your dreams come true!
Posted by: Kamila (nicky's Mom) | website | February 7, 2008 3:11 PM
Best of luck to Sammy and family.
Great website.
Posted by: Scott Toney | website | February 7, 2008 10:03 AM
i forgot to leave her care page.
caringbridge.org/visit/sarahheuke
Posted by: BRITTANY HEUKE | website | February 7, 2008 8:51 AM
my daughter has hlhs and just had her glenn in late november and is doing great.our problem is that she doesnt like to eat much.have you gone trhough that?my prayers are with sammy and your family
Posted by: BRITTANY HEUKE | website | February 7, 2008 8:49 AM
OH MY HEAVENS he is adorable. Your story sounds just like mine. From finding out you are pregnant till.. now.
Good luck will ALL of it... and I'll keep in touch!
Posted by: Lisa Trent | website | January 30, 2008 7:33 PM
Sammy love keeping up with you! You and your family are an inspiration to us!
God Bless.
Lucas-HLHS
& Family!
Posted by: Jennifer Iguina | website | January 26, 2008 12:37 PM
Have a great day Sammy what a joy it is to read your story. You are an amazing little man. Much love to all your family from Australia. xxoo
Posted by: Heather | website | December 25, 2007 4:09 PM
He is such a little man these days! I can't believe how big he looks.
My healthy heart 2 year old was way ahead on the physical development side, and at Sammy's age saying nothing. Now she won't stop talking! He'll get there.
Sammy is such an inspiration for us. I only hope Abby can do as well as he has!
Posted by: Alison (Abby's mom) | website | November 25, 2007 9:23 PM
Hello,
You posted a reponse on my blog about the little HLHS baby I kept crying over.
Thanks for coming over and seeing our page.
My son had a hypoplastic aorta with a coarc. In utero they suspected that he may have HLHS, but once he was born they decided that enlarging his aorta would help him and that his heart would grow with the help. Boy has it. He turned two Monday.
I cry about the saddness that everyone faces when seeing their children in pain, but I cry because they are God's angels.
I love the sight, I will keep reading and catching up on it!
Posted by: Mandy | website | September 20, 2007 9:34 PM
Hello,
What a wonderful way to help others who are going through the same thing. Thank you for sharing. Good Bless!
Sincerely,
Erica Samson
Portland, OR
Posted by: Erica K Samson | website | September 16, 2007 2:36 AM
Hi Samson's family,
I received your request to be added on flickr and so checked out your profile. I was pleasantly surprised to find another HLHS family attached to that account...I didn't know you could do that (request on flickr). How neat is that?!?! Anyhow, if you would like, please visit Tyler's carepage...www.carepages.com - cp TylerCurtis. And if you ever want to chat, our email is tcsears@att.net.
Take care and heart hugs,
TCSx3
Posted by: Tammy, Todd, and Tyler Sears (TCSx3) | website | September 11, 2007 9:44 AM
Samson looks as strong as his name. It is so nice to know people who are going through the same thing because it helps keep us strong and positive. God bless you and your family and please keep us posted on is progress.
Posted by: David & Tammy Moore | website | September 8, 2007 9:53 AM
Thank you for sharing your amazing story-God bless you, your husband and and Sammy.
Posted by: maria | website | September 5, 2007 5:05 PM
I had a baby girl with the same problem of Samson. She born on june 19 2007 and the next day we received the bad notice but my husband and I decided not to do any surgery and let the baby live her life like she was born. She passed away on july 13 2007. She lived 24 days. I want to talk about it, how you felt in pregnacy. do you have more children iam affraid of having another baby with the same problem
Posted by: bertha valadez leon | website | July 15, 2007 7:10 PM
It was great to meet you guys in Boston with Terri & Darren!
Posted by: Vizma | website | July 4, 2007 5:04 PM
Just dropped by to see how the lil man is doing. He is so adorable!!
Posted by: Lori Spencer | website | June 17, 2007 11:15 AM
Just wanted you to know how much you helped my daughter, Karen, recently with your blog, e-mails and phone call.She and her husband, Brian are truely blessed to have your support. Love to you and especially little Samson. Gramma JoJo
Posted by: Joanne Stevens | website | June 12, 2007 9:09 PM
Hi! Just checking in on your cute little boy! So glad to read that he is doing so good. Our son, Daric, is now almost 5 weeks post Fontan and doing and recovering very well!
I love checking in on Samson....he is so cute! Keeping Samson in our hearts!
The Voss Family
Posted by: Daric's Mommy | website | June 8, 2007 2:26 PM
Hello, I hope all is well! May God Bless you and your little sweetheart.
Kevin & Donna Maynard
Carepages.com
page name Landen
Posted by: Kevin Maynard | website | June 6, 2007 5:45 PM
Our son was born on May 24 2005 with HLHS. He is getting ready for his Fontane in the fall. God Bless you and your family. God will not give us more than we can handle.
Posted by: David & Tammy Moore | website | May 27, 2007 11:19 AM
Thanks for leaving a comment on Drew's blog.
I'm so glad that Samson is doing so well. I actually follow another blog on HLHS - baby Abby. I have learned a lot about it. Sounds like Samson is doing great. We will keep you all in our prayers.
Drew's Mom
Posted by: Drew's Mom | website | May 8, 2007 7:45 PM
Peace people
We love you
Posted by: HelloWorld | website | May 4, 2007 7:34 AM
Hi, I met Samson's g-pa today and he told us about your baby. Our hearts and prayers are with you. I work at Pearle Vision, g-pa came in today for a repair.
Posted by: Dawn Carpenter | website | April 27, 2007 1:14 PM
I HOPE ALL IS WELL WITH YOUR FAMILY. WE JUST FOUND OUT TODAY THAT OUR CHILD IN MY WIFE, STEPHANIE'S WOMB MAY HAVE HLHS. I HAVE YOUR FAMILY IN MY PRAYERS. MAY THIS YEAR BE A POSITVE AND PROGRESSIVE YEAR!
Posted by: Fitzgerald Delacruz | website | April 11, 2007 3:43 AM
You visited our blog site a few months back while I was pregnant w/our son, Isaac. He was born Feb 25th & has made it through the Norwood Procedure. Your site has been a great resource, both for our family & those families we've met here at UNC who are going through the same thing.
::Patience Leino
babyleino.blogspot.com
Posted by: Patience Leino | website | March 26, 2007 9:37 PM
Hi,
Good luck with everything. Our son is born at January 30, 2000 with HLHS in the Netherlands. He is doing great since his Fontan and later closing his fenestration. Just a "normal" sweet kid. Here in the Netherlands it was not common to do the surgery but we pushed for it soo he was the 9th kid.
Regards,
Arno
Proud dad of Ralph (30-01-2000, HLHS)
Posted by: Arno | website | March 16, 2007 6:31 PM
MAY THE ALLMIGHTY BE WITH YOU SAMSON
Posted by: ELANGOVAN | website | March 11, 2007 9:15 PM
Hello,
I think your site is great...Your family is in our prayers! Please keep our Landen in your thoughts and prayers also. sometimes if find myself thinking of the long road ahead with landen and it is hard to deal with it all. If you or anyone reading this need to talk or has any questions about HLHS please feel free to email me.
The Maynard Family
from West Virginia
Posted by: Kevin & Donna Maynard | website | March 10, 2007 9:39 PM
Hello,
I think your site is great...Your family is in our prayers! Please keep our Landen in your thoughts and prayers also. sometimes if find myself thinking of the lond road ahead with landen and it is hard to deal with it all. If you or anyone reading this need to talk or has any questions about HLHS please feel free to email me.
The Maynard Family
from West Virginia
Posted by: Kevin & Donna Maynard | website | March 10, 2007 9:38 PM
i hope you are all as a family doing well.
Posted by: samson | website | February 10, 2007 11:20 AM
Wow...what a wonderful website you have for your beautiful little boy!!! He is darling with his big eyes! I came across your website through another "Heart Family" blog. Your site has such wonderful info. to give to all of the many HLHS families...our little boy was born with HLHS in Oct. 2003...he is a thriving, happy three old now! He is getting ready for the Fontan.
Your family is beautiful...thanks so much for sharing your story. Samson will remain in our prayers.
The Voss Family
from Kansas
Posted by: Mona | website | January 28, 2007 11:38 AM
well i am not much of a discriber but i can tell you that what your are doing is a really good thing and i hope your and our prayers come true for for sammy. such a good looking and bright child you don't see someone like him everyday i wish he will get better and i will be cheking to see/hear he does.
Posted by: samson | website | January 27, 2007 9:39 AM
just wanted to let samson know that my daily prayers include him now...god bless samson
Posted by: margaret greene | website | January 10, 2007 6:42 AM
I stumbled on your website after one of my many "why do I do this to myself??" Google fests where I have combined every AS, ASD, AFP thing I can come up with. Your site is a great reminder that she is our Zoe, not our diagnosis. Thinking positive thoughts for ya!
Posted by: Symphony | website | January 8, 2007 10:48 PM
Very nice website. What a darling boy! Gives a person hope for Jackson! Can't wait to see him bouncing around chewing on everything!
Congratulations on your beautiful boy!
Jackson's Auntie Jenny.
Posted by: Jenny | website | December 28, 2006 9:40 AM
I came across your web site through my son Jacksons. You have given me hope that ecerything will get better and easier. Take care and God bless. You are in my families prayers
Posted by: sara | website | December 28, 2006 9:08 AM
I just wanted to stop by and see how Sammy was doing. I love to hear how great he is doing. He is a handsome little man. I wish you all the best.
Posted by: Erin | website | December 21, 2006 8:35 AM
You guys are awesome, and a breath of fresh air to read about! Samson's all leaps & bounds and I'm. glad to hear about his progress. He will remain in our prayers.
We have a 2.5yo girl, Michaela, with HLHS whom is currently pre-Fontan.
Posted by: Michael Kost | website | December 19, 2006 1:41 PM
Hey Erica! Mom and I just watched all the youtubes and OMG I want to kiss the hell out of him. He is SO FRIKKIN CUTE.
I love the 'conversation' one - it had us both cracking up! So glad things seem to have settled down (sorta) in your lives...I mean, save for the maple leaf poisonings and such.
I'm gonna have to start nudging Joey about continuing the genes on this end - hehehe
-Cuz
Posted by: Cousin Cheryl and Aunt Debbie :) | website | November 10, 2006 3:22 PM
If the positive energies flowing out of his photos are a sign...he's going to be A-OK! Keep the faith and I will add Sam and the two of you to my prayers.
Posted by: amy pedatella | website | October 31, 2006 9:58 PM
You look great Sammy! It's great that you got to see all your relatives! I'm sure they will tresure the memories! I will keep you in my prayers!
Lisa
Posted by: Lisa Spencer | website | October 25, 2006 3:49 PM
Sammy looks great! It's wonderful that he got to meet all his relatives. I'm sure they will treasure the memories! I will keep Sammy in my prayers!
Lisa
Posted by: Lisa Spencer | website | October 25, 2006 3:40 PM
We just wanted to thank you for your e-mail regarding our daughter, Matilda. We are thrilled that you found her site and that your son is doing so well! We are blessed to have Tillie in our lives. She is a typical 4 1/2 year old who loves Preschool, dance class and tormenting her 20 month old sister, Lucy! God bless you all and please keep us posted on Sammy's progress. -The Roventines, St. Paul, MN
Posted by: Jodi Roventine and family | website | October 22, 2006 4:40 PM
I am addicted to your site too and I find it amazing.Sammy is absolutely beautiful and doing so well. Just love his chubby cheeks.
Posted by: Heather | website | October 15, 2006 2:01 AM
Hi i have a grandaughter who was diagnosed with shones syndrome when she was 9 days now she is 1 year and is the happiest and funniest baby i haver seen. She makes me so happy everytime i see her
Posted by: bedrije | website | October 14, 2006 12:02 PM
:)
Posted by: becky | website | September 17, 2006 7:59 PM
Hi Erika & Jason,
Thank You so much for keeping us in touch, your son is absolutely beautiful!!! I can't imagine what you have all been thru in the past 6 months,but you'd never know it by looking at little Sammy,he looks like such a happy guy! Keep us posted,we'll chk the website also. You are all in our prayers and we wish you the best.
Love,
The LeBlanc Family
Posted by: Karen LeBlanc | website | August 23, 2006 6:18 PM
I got your website from my nephew Cason's guestbook. Its so nice to see how great your son looks & gives us so much hope for our little man. We will keep Sammy in our prayers. God bless you all. Mindy, Aunt to Cason, HLHS 3 weeks
Posted by: Mindy Kauble | website | August 22, 2006 9:15 AM
hello Sammy - you are the cutest little monkey. :)
my thoughts are always with you, Erika and Jay. xo
Posted by: bran | website | August 4, 2006 10:28 AM
Hello! I wish to thank authors for this site, it was pleasant to me! I hope that the project will develop only. With the best regards, Samanta.
Posted by: SamantA | website | July 25, 2006 2:42 AM
Hi Erika,Jason & Sammy, I said many prayers for all of you today, I hope all went well and continues, Sammy, You are "ADORABLE" I can't wait to meet you, Love the Jacabacci's
Posted by: Linda Jacabacci | website | July 19, 2006 11:02 PM
Hi, I got here from your site of which I've been an occasional reader for a while. I don't know if I've commented before but Sammy is so precious and growing so quickly. I wish you all the best on your journey as I send good thoughts your way.
Posted by: Elaine | website | June 24, 2006 2:41 AM
Great site. Our daughter is 2 and has had the first 2 surgeries. She will have her 3rd surgery sometime in the next year or so. I know I would have loved to have a site like this 2 years ago. I'm sure you will help many begin the road you are already traveling.
Dina
Posted by: Dina | website | June 19, 2006 10:23 PM
Just checking in since it's been a while since your last update. Hope all is well with Sammy!
Tricia & Olivia
Posted by: Tricia Belfonti | website | June 6, 2006 3:33 PM
hiya
I've stumbled across your page and just wanted to say I have just read all your story, I am glad things are going well and little sammyis an absoulbe gem,
Take Care Love and kisses
Sarah
Posted by: Sarah | website | May 16, 2006 5:39 AM
I came across your page, and I wanted to say congrats on the beautiful baby. My daughter who is 2 months old has HLHS, and I know exactly what your dealing with. I will keep you in my prayers. Heart babies are stronger than you think!
Posted by: Cori Page | website | May 9, 2006 1:20 PM
Congratulations Jay (and Erika too) on the birth of your son - what beautiful eyes!
I will think of Sammy and say a little prayer whenever I hear "Danny's Song."
Take Care
Posted by: Heather Hansen | website | May 7, 2006 8:15 PM
Hi There,
What a beautiful child.....don't ever stop giving him hugs and kisses. As you both well know, he deserves the world....and with a dad like Jay, he's got nothing to worry about. We have a 16 month old girl....with another baby boy due this July....and this has REALLY changed our outlook on life. Kids are best things in the world. You are both blessed. Keep your heads up. Natasha, Alexa and Dave wish you the very, very best!
Much Love,
Scrappy
Posted by: Dave Scrappy Scarpato | website | May 5, 2006 10:57 AM
We both wanted to congratulate you on the birth of such a beautiful, beautiful baby boy. You two will make the greatest of parents and we just couldnēØ be happier for you both. We know that there are some more bumps ahead, but with such a perfect name like Samson, he is sure to grow to be a strong, intelligent, and outgoing man, taking after both of his parents. Good luck and again Congrats!!!
Posted by: Joe & Jaylynn | website | May 1, 2006 11:02 PM
Hi,
Samson is beautiful and though we aren't frequently in touch , I have thought of you guys and the baby often. I sincerely hope that things are going well! It goes by so fast!
Kim (Ritz)
Posted by: Kim Gray | website | April 25, 2006 8:25 PM
Hi Jay (and Erica of course),
Just wanted to drop you a quick note and say congratulations on your new arrival. I hope that everything is going well and that baby Sam is coming along. BEST OF LUCK to you all.
Posted by: Jenn Calardo | website | March 17, 2006 10:57 PM
Hi Little Samson, I am so happy to see how far you have come, you are adorable and you are your daddy's twin, I can't believe how much you look like your dad, Erika & Jason, Samson is very lucky to have parents like you two, and you have both been blessed with Samson, you are both also blessed to have the parents you have, I will pray everyday for all of you,all I can say is Thank God!
All my love, Linda J
Posted by: Linda Jacabacci | website | March 14, 2006 9:57 PM
Congratulations on your beautiful son! Our son Ethan (9 mos. HLHS) was also born in Boston. They are amazing there. I'll keep your little on in my prayers. And keep up with the breastfeeding! They told me that babies with HLHS usually don't nurse, but Ethan did and he did GREAT. He actually preferred it to the bottle. I know it's a lot of work, but SO worth it.
Congrats. Just take it one day at a time. These kids are amazing blessings!
Jessica Lindberg
Posted by: Jessica Lindberg | website | March 10, 2006 3:04 PM
My prayers goes to Baby Samson and you guys, Mommy and Daddy. The love you given to baby Samson will overcome any obstacles to come.
Let Siya and I know if we can do anything to help.....
Your neighbor, khal&Siya
Posted by: khal van | website | March 6, 2006 11:43 PM
hi,just wanted to let you guys know you 3 have been in our prayers,know that little samson is here we wish him the best anf he will be in our prayers again on his journey to recovery
Posted by: tina,jeff,katie,chrissy hodkinson | website | February 26, 2006 5:56 PM
Congratulations to all!!! What a wonderful gift!!! Our love and prayers are with Samson and you! We know that love can conquer all!!!
xoxoxoxox
Posted by: Aunt Jan, Robert, Nicole and Reece Lynch | website | February 25, 2006 11:04 PM
Congrats!!! I have a 17 month old with HLHS Variant (shones syndrome variant) He still has most of his left ventricle and it is functioning. Surgery wise he is still going down the path of a HLHS child...he just has better percentages and they are hopefull his he won't ever need a transplant. Anyway Congrats and i'm praying for all of you on this special journey.
Jen
www.carepages.com
carepage: jacobsheart
Posted by: Jen Vercammen | website | February 25, 2006 7:39 PM
Hi I am currently deployed on my second tour in Iraq and we have a friend of the family who has a baby on the way that has also been diagnosed with HLHS. Your situation has been an inspiration to me on an individual level and I am praying for Samson as he joins your family and his continued journey in life. He will be such a blessing and gift to your family. He in turn is blessed to have parents who love him so very much already and have a genuine love for the Lord. God Bless you today and always.
Sincerely,
Nate W. Blackford
Cheif Warrant Officer
United States Army
Apache Longbow Pilot
Posted by: Nate Blackford | website | February 25, 2006 2:12 AM
Hi I've been keeping updated with your progress for months now I hope all goes well today,I've been praying for you Best of Luck Sinead
Posted by: Sinead Flynn | website | February 22, 2006 11:12 AM
We are from the Hope Group and wanted to tell you that you are all in our thoughts and prayers. Please let us know how things are going when you can. God Bless
Sara
Posted by: Sara | website | February 21, 2006 7:08 PM
Hi i'm from the hopeforhlhs group and just wanted to say good luck with your induction! Our thoughts and prayers with you.
Posted by: Brooke | website | February 21, 2006 3:19 PM
I seen your page on the 2 hearts website, and want you know I am praying for Samson. I lost my angel due to HLHS but his short life has taught me so much. I have many friends on carepages that have had successful outcomes if you would like there pages please let me know. My son had his Norwood at U of M by Dr Bove, I hope my message is not disheartning, I just wanted to let you know you are not alone, this defect has affected so many, My son was just not meant to be here on earth He helps me help others.
Michelle Jolley
Carepages Jolleyfamily and babyjolley for my new baby girl
Posted by: Michelle Jolley | website | February 8, 2006 4:12 PM
I can't believe it is 36 weeks already. I can't imagine what you are dealing with. Just know that most of it is out of your control, so just stay healthy for you and Baby Samson. Skip, Jonah and I will be praying for you, Jay and Samson.
We love you all.
Posted by: Danielle | website | January 24, 2006 5:38 PM
Hi Erika and Jason, Just wanted to let you know that I was here and all three of you are in my thoughts and prayers. I can't wait to meet Samson and have play dates with my my little ones. I just wanted to say that Adam's sister has a congenital heart defect and is now a freshman in college and doing amazinng....I truely believe that this is what has made her the amazing person she is today. I can't wait to login on and find out that Samson was born!!!!!
Posted by: Colleen Angelopolus (Shea) | website | January 20, 2006 6:53 PM
Erika,
What is so strange is that you are my 1st cousin, we have not spoken w/ each other in probably 15 years, yet you and Samson remain in my weekly prayers at my ladies' bible study group. They all ask, every week, how your pregnancy is going and how are your emotions ... and while all I tell them is what I read on your blog, it remains enough for 6 "strangers" to be praying for you every week. Just got home from my small group and wanting to share that with you. My recent renewed Faith in God keeps you close to my heart .... regardless of the last time we saw each other. May God continue to Bless you and Samson.
Posted by: Kerri Cicola | website | January 11, 2006 10:39 PM
Just wanted to drop a hello and wish you the best of luck. I've been reading some of your early posts and it's brought tears to my eyes. I'll be keeping you, your husband and the little one in my prayers. I believe that God only gives us what we can handle, but sometimes I think He thinks a little TOO highly of us. Peace!
Posted by: Gina B | website | January 10, 2006 12:03 AM
babies re-wire your life. you know one is coming for months, and then when it finally arrives you still feel totally unprepared. this is especially true for kids born with congenital heart defects. keep the faith. though the experience is tough now and will get tougher, the data are promising - it's very likely that sammy is going to have a great life with you and your husband. i went to the pool today with our 6 month old daughter amelia (she was born with congenitally corrected transposition of the great arteries - a bad defect that was corrected in oct at the cleveland clinic), and she loved it. absolutely loved it! i look forward to reading about what sammy loves.
Posted by: neal freeland | website | January 7, 2006 2:13 AM
My son was born August 21, 2005 with HLHS. It has been a rough road, but he is doing well, and it's all worth it! Good Luck with the rest of your pregnancy. My thoughts and prayers are with you and your baby.
Jamie Bolen
mom to Bryce (HLHS)
and two heart healthy kiddos.
www.bryce.chdfamilies.org
Posted by: Jamie Bolen | website | January 6, 2006 9:31 PM
just wanted to say hi and our thoughts and prayers are always with you and Jay and baby Sam (Little Monkey).
Keep us posted.
Love ya,
Aunt Elizabeth
Posted by: Aunt Elizabeth | website | January 5, 2006 2:30 PM
Just wanted to say that I have been thinking of you, Jay and Samson. Hope you had a great holiday. I know that Melonie came to visit you or was supposed to come to see you, Thats what nanny said anyway. Hope you enjoyed her visit. Just wanted to wish you look on Friday. Have been checking you site regulary to see any updates. Keep us up to date. Can't wait to see the pictures of Samson. Our prayers are with all of you.
Love,
Cousin Eileen
Posted by: Cousin Eileen | website | January 4, 2006 7:12 PM
Thanks for leaving a comment on our site with well wishes. We are a bit more down the road than you. Best of luck, you are in our thoughts and prayers.
Lyndall, Mum to Mia, 5 months, DORV
Melbourne, Australia
http://cowleybaby.blogspot.com
Posted by: Lyndall Cowley | website | January 4, 2006 5:32 PM
My thoughts and prayers are with you and baby Samson!
Posted by: Danielle | website | January 3, 2006 3:46 PM
There is so much hope for HLHS. My stepson is 6.5 with HLHS. I will pray for baby Samson!
Lisa A. Spencer
Programmer/Analyst
Wife to Daryl
Step-mom to Josh, 6.5, HLHS, doing great by the grace of God
Josh's site: http://www.geocities.com/darylandlisa/
Mom to Alissa, HH, 5, and Abbi, HH, 3.5!
Posted by: Lisa Spencer | website | January 3, 2006 11:42 AM
I wanted to let you know that we're thinking of you & praying for you. Your friend, Allie, told us about you & we wish you all the best! Samson is so lucky to have wonderful parents like you!
Posted by: Linda | website | December 31, 2005 6:08 PM
I just wanna say my thoughts and prayers are with you and your new baby.
Posted by: Michelle | website | December 31, 2005 3:06 PM
Erika and Jason -
My friend and I used to have a blog miscellaneous bs - which is no more, but back then we used to read you religiously. She just randomly happened upon your site and read all about what is going on - our thoughts and prayers are with you guys. I just had a baby back in July so I know how nerve-wracking it all can be - but with this on top of it...hugs
Bazil Teese and Sophie Cheese (Kel and Kat)
Posted by: bazil teese | website | December 28, 2005 10:46 PM
Erika and Jason-
As always, I have been out of the loop... and just heard about all of this today so I apologize for not contacting you sooner. Our thoughts are with you. I look forward to meeting my 2nd cousin Sam soon...
Love,
Brooke
Posted by: Cousin Brooke | website | December 28, 2005 9:29 PM
Erika & Jay,
I'm so glad to meet a fellow BCH patient! Your site is wonderful with lots of useful HLHS info. Our baby Grace will be born at Brigham and Women's the 2nd week in January, and we'll let you know how it goes...
Happy New Year!
Angela & Jay :)
Posted by: Angela | website | December 28, 2005 6:42 AM
Jason and Erika:
He is so lovely and peaceful in the picture! Samson will be fine with all the love and pray!
Please let me know if anything that I can help.
Merry Christmas and Happy New Year!
-Chao
Posted by: Chaohui Li | website | December 23, 2005 1:58 PM
J & E,
Thanks for sending the email, and thanks for sending out the announcement... Wow, what a mixed bag of feelings about the whole thing. I'm happy about you having a baby, but so sorry about condition. Happy that techology has advanced so far as to detect it early, but sad to hear about your parting from FEN.
Well, if there's anything I can do, please let me know. I hope that the next few weeks develop help Samson so the condition is minimized.
My thoughts are with you all
Best,
Ken
Posted by: Ken Manthorne | website | December 23, 2005 12:27 AM
Erika,
I know how hard it was to hear the news about your son's heart condition. Our son has HLHS and it was very dificult to comprehend that something so bad could be wrong when you can hear that beautiful heartbeat. Our son did wonderful for his Norwood he was only intubated for the surgery and for two days after. He learned to eat all on his own. We had an allergy and blood disorder that caused many other complications but those are so rare that the top hospital Boston, CHOP and U of M had never seen another case like it. Stay positive focus on all the blessings. When Samson is born write down all the wonderful baby things he is doing. Focus on his great little personality. You can get a little overwhelmed by all the medical stuff but I found by making a jounal of all our son's neat and beautiful habits it helped us realize that there was more to the hospital days then just tests and procedures. Praying for a safe holiday and great results on all your ECHO's and ultrasounds. A wonderful delivery and a healthy strong little boy.
Terri and Corbin 17 months HLHS
Posted by: Terri Grabb | website | December 19, 2005 4:48 PM