Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
I just woke from a dream where I was left stranded pretty far out in the ocean, and a dolphin came along, nudged me onto his back, and carried me back to shore.
You can't help but see the subconscious in that.
I have a sort of strange request: I don't know how much you know about reiki, but I've seen it in action (felt it in action, even) - and I believe in its capabilities. Around 9am EST this morning, a whole wonderful group of reiki masters from around the world will be joining together and focusing healing energy on little monkey.
I believe prayer is another form of this energy, and I believe positive energy - as much as I'm not feeling all too positive lately - can do so much for the world. Even if you don't believe in reiki, could you maybe stop and say a little prayer or send some hopeful energy of your own at about 9? (Though, we'll take it just about any time, anywhere.) At this point, I imagine it can't hurt, right?
It's 4:30 in the morning and I can't sleep anymore. I had a rough, rough evening. Luckily, a coworker was still around to scoop me up and take care of me for a little bit. I wandered the grocery store until I knew Jay was going to be home. I've never in my life needed people so much, but I didn't want to be around anyone and I couldn't stomach being by myself (my parents were stranded in NY because of the awful, awful rain). What's a girl to do? So food shopping at a fairly new-to-me store it was - lots of people, none of whom know me or what's going on, no routine, lots of distractions. Needless to say, I came home with these little brownie-whipped cream concoctions they had in the bakery. Jay came home moments later and took care of me, which I'm so grateful for, because he needs to be taken care of, too, right now.
I'm going to try to sleep a little bit more - being surrounded by the kids at work is the best therapy right now, though they definitely require more energy than I have - so I need all the rest I can get!
Please - if you're around and you remember, even if it's just a little kiss blown his way - send some love around 9? Thanks.
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I made it into work this morning. There was a bit of a scare with cramping and spotting after I woke up. I hadn't felt little monkey moving around, either, so I was in a bit of a panic. But the achiness has gone away and he's kicking a bit, so I'm just watching things very closely.
My friend Matt showed up yesterday with a huge hug and a gift - tickets to the movies and quite a bit towards dinner at a restaurant of our choice. I still get a bit choked up when I think about it. He made us promise to take some time for ourselves. After, I met up with Erin for dinner, pregnant-lady chat and general silly gossip. It was wonderful to see her, and even more wonderful to relax and have a good time. In-between, there were emails and phone calls of support and love (and promises to come up here at the drop of a hat, we just needed to say the word).
We truly have some of the most amazing friends.
So I'm here and I've given myself permission to take it one class at a time. I felt a bit more positive this morning, so here's to making it through the day. And when I need it, I can come back and read this tidbit from a Reiki list (they're all getting together tomorrow to send healing energy to me and monkey) - it makes me giggle:
Sending all the Reiki Angels we can muster to the "Little Monkey" who will have a "Reiki Angel's Heart!" If he's kicking like a little monkey then you can bet he will hit the ground running & swinging when he arrives! Maybe even beating his chest & yodeling like Tarzan!
It's just such a silly image in my head, I can't help but smile. Our little Tarzan. How cute.
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