Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
We are home!
It was one hell of a rollercoaster week. In case you're just checking in, Sammy went in for a routine cath to close the fenestration and ended up with emergency open heart last Saturday. (His fourth open-heart, if you're keeping count!) He came home on Thursday, just 6 days after open heart, and you'd hardly know what he's been through.
Before all of this, Sammy's oxygen saturations were high 50s/60s. His sats were hitting 97 when we left the hospital on Thursday - he is PINK! For the first time since he was born, Sammy's lips, fingers and toes are pink, not purple. (Though, I will admit, I'm so used to his purple-blue hue that pink seems pale!) His appetite is amazing - he's gained 2 pounds since he went in for the cath over a week ago. And his energy level is through the roof! You can tell he feels so much better - he doesn't gasp for air and he doesn't slow down. It simply amazing.
I will eventually get around to summarizing the past week, but I think that I am still in shock and haven't quite processed it all myself. It still feels so surreal, especially since we've spent the four years since his diagnosis settled into the idea of three surgeries. It was a known quantity in an uncertain CHD world... so to have that idea shifted with little time to prepare emotionally - well, it's been an interesting week.
Previous entry :Recovery
Next entry: Happy holidays!
so glad you all are at home. its crazy to see them pink isn't it! i almost miss my little blueberry! i know how crazy hopital life is and i also know how great it is to be in your own bed and not having to get some one to unlock the kitchen for ice and water! our prayers are with you!
Bryce's Mommy
Jessie Barbee
Wow! I do not know if you remember me, but I am Emerson's mom. Emy has HLHS and we are currently post Glenn. I like to check on Samson every once in a while and was shocked to see this last entry. I am sorry you all had to go through a 4th, but happy to see he is doing so well. I hope you all are doing well during this holiday season.
Sara
Posted by: Sara at December 16, 2009 11:48 AM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
Wow! SO glad that he is doing well and that you are home! Though the surgery was unexpected I am glad it was successful and you have seen such amazing improvement :-D
Posted by: GoofyJ at October 4, 2009 10:22 PM