Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Sammy had his 3 month post-Fontan checkup today. It was a wonderful visit! Dr. Brown said that he could barely hear the tricuspid regurgitation and that everything else looked and sounded great. Sammy's sats were at 81, which is great considering we were seeing high 60s back in June. This means that the fenestration settled in and closed up a bit on its own over the last three months. The fenestration likely will not close completely on its own, so Dr. Brown said we're probably looking at a cath in 1-2 years to close it. In the meantime, he said, he'd love for Sammy just to be able to be a little boy without all the medical stuff in his way.
We don't need to go back for another 6 months - which as Jay pointed out, we don't have to go back until next year! At some point in the next year they'll do an echo and a holter monitor, but in the meantime, we can get back to living life on the other side of the Fontan. Yay!
Previous entry :"You've gotta just let him be."
Next entry: Ellie's Fontan
Thrilled to hear that Sammy's sats are up and the fenestration is closing. I have no doubt that your positive outlook has alot to do with his success. All the best.
Posted by: Janet Jaynes at August 27, 2008 9:01 AMThank GOD for the excellent report! I'm so happy that you guys can breathe easy for a bit.
What a sweet little photo. :)
Posted by: Megan at August 27, 2008 9:16 AMYay, Sammy! So glad to hear the good report. Now, he can focus on his music...Carnegie Hall, here he comes!
Posted by: Jennifer at August 27, 2008 7:52 PMHello
I'm from London and my toddler has tricuspid atresia, hyoplastic right ventricle and other heart problems. She's had stages 1 and 2 so far. It's always lovely to hear of kids getting through stage 3 and doing so well afterwards. Your bog is nice and I share your feelings and thoughts in so many things you say - incluing the scary thought that only 15 years ago or so, our kids had little chance of survival. Lots of love to Samson - he's such a cute little boy, I'm sure you're so very proud of him!
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This Hope for HLHS site belongs to Erika, Jason & Samson
Great report from the doctor!
Posted by: Amy Fiorillo at August 26, 2008 8:42 PMLove the picture of Sammy fishing, too cute!
:)
Amy