Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
This time last week, we were waiting to hear from the surgeon about how Sammy's surgery went.
One week later, we are HOME!
I will write more later, have a few thoughts and reflections on the whole experience, but all that matters right now is that we are home, with Sammy, the windows are open, fresh air and sunshine, Dragon Tales on the TV, a puzzle is scattered all over the floor and the kitchen is covered with pots and pans and drumsticks.
Being home has never felt so good.
Previous entry :Fontanized - Day 6 Update
Next entry: Bump from home
OMG!! I am so happy for you! I'm literally crying. Wish I could give you all hugs!!! Way to go Sammy!!!
Posted by: Jennifer at May 28, 2008 1:43 PMWoohoo!!!!!!!!!! :)
Posted by: M@ at May 28, 2008 1:47 PMOh, Erika! I am SO happy to read this post!! Welcome home!!
Posted by: Susan at May 28, 2008 1:58 PMWonderful, wonderful!! I am so happy for all of you! I pray you have a wonderful, and restful, day back at home, and that each day just gets better and better! Yay for Sammy!! Welcome back home!
Love and so many hugs!
Kristy from Georgia
I can't type how big I'm grinning right now.
--
(not even close to the real thing!)
Congrats! Way to go Sammy! You guys are all amazing.
Posted by: Stephanie at May 28, 2008 2:31 PMSo so so fabulous!!!! He is quite the little trooper (as are you guys). Really happy for you to be back home, enjoy :)
Posted by: Suz at May 28, 2008 2:43 PMYay!!!
So happy for all of you!!
Way to go little guy!
YAY!!!!!!!! We are so happy that you have your little man home! Way to go Sammy! Keeping all three of you in our thoughts as you all three continue to recover. Special Heart Hugs to Sammy from Daric.
With lots of love!
The Voss Family
WOW! What an amazing little boy Sammy is. Way to go, all of you, for getting past this huge hurdle. Get lots of rest tonight. Keeping you all in our prayers...xoxo
Posted by: Megan at May 28, 2008 3:35 PMI'm go glad that your home! Have fun and enjoy the beautiful weather.
~Jen
YYAAAAAAAAYYYYY!!!
Posted by: Michael, Patty and Sophia at May 28, 2008 4:13 PMWhat terrific news! I am so happy for you guys and for Sammy - no more poking and prodding every hour on the hour!
You will have to keep us posted on how much better he is after having had the Fontan (sats, etc.)
Posted by: Jen Wright at May 28, 2008 4:41 PMThrilled to pieces for y'all...now go have some wine and enjoy your family :)
Posted by: Molly at May 28, 2008 5:34 PMThis is some of the best news I've lately!!! I'm so, so happy for you guys, and of course I'm thrilled Sammy's doing well!
Posted by: Krista at May 28, 2008 5:41 PMThis is some of the best news I've lately!!! I'm so, so happy for you guys, and of course I'm thrilled Sammy's doing well!
Posted by: Krista at May 28, 2008 5:41 PMSuper, great, Wonderful.
Posted by: Foggy at May 28, 2008 6:19 PMWoo Hoo! That is awesome! Enjoy sleeping in your own beds tonight!
Posted by: Andrea at May 28, 2008 7:21 PMHoly WOW!! That seems so fast, and totally amazing...WELCOME HOME : )
Posted by: jessie at May 28, 2008 7:38 PMOh just PERFECTION! SOBBING over here! Welcome home!
Posted by: Tricia at May 28, 2008 8:03 PMYou're home!!! Yay!!:)
Congrats! And enjoy sleeping in your own bed!
Shari
Posted by: Shari at May 28, 2008 9:03 PMWow...what a blessing!
Posted by: Melinda Tavares at May 28, 2008 9:25 PMHi. my niece will be getting her fontan very soon. We dont know the date yet but we know it will be shortly after shes 2. I just wanted to let you know that reading about sammy has helped me so much... Seeing how good hes doing in just 7 days... These babies are little miracles... Congratulations on being home.. I am so happy for you guys. I cant tell you how much it has helped me reading about sammy.Thank you
Posted by: jennifer kempf at May 28, 2008 10:13 PMI am sooo soo soo SOOO happy for you guys! How wonderful it must be to be back in your own surroundings where everything is nice and familiar and HOMEY. Welcome home!
Posted by: jesser at May 29, 2008 12:25 AMI am so happy for you guys, my little guy (21 months old) just had his Fontan March 12th, we were home in 11 days and then on April 11th, we had another baby boy, heart healthy! We know all to well how un-fun hospitals are!
Sammy has been such an inspiration to us, we love your site! Go Sammy!!!
Way to go Sammy! So happy for you guys:)
Posted by: Brad and Kelli White at May 29, 2008 2:49 PMAbsolutely wonderful news!
Posted by: Cindy at May 30, 2008 11:31 AMBest.News.Ever.
Enjoy being home and getting back to your normal life with this behind you. We are so happy for you guys!
Posted by: Alison (Abby's mom) at May 30, 2008 9:56 PM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
Congrats!
Posted by: divrchk at May 28, 2008 1:38 PM