Pictures from Stage 1, the Norwood
Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan
Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doing well. Still not eating, but he is asking for his bottle & milk more often. Updates as of 11:30am:
One chest tube came out this morning and the pigtail (from yesterday) should be coming out around 2. That leaves one tube in, and even that has drained almost nothing since two days ago.
There's talk of being able to take him outside today. It is GORGEOUS here and the fresh air, sunshine and change of scenery would be really good for him.
There's also talk of moving to the floor today. I'm not getting my hopes up too high, but it would definitely be nice to be able to take him to the playroom.
Not much sleep last night. Sammy's belly is quite backed up and nothing seems to be working. It's causing a lot of pain for him - sometimes we're not sure if the crying is a result of the chest tubes or the lack of "movement", if you catch my drift. The three hours of interrupted sleep switching from his bed to the parent bed and back is starting to catch up with me. Actually, I think ALL of this is starting to catch up with both of us.
Thanks so much for all your thoughts and prayers and positive energy. Our heart-friend Drew had surgery on Friday and is recovering right now as well. If you could send some of that love his way, we'd appreciate it. (I know, we ask so much! :-))
It sounds like Sammy has made some good progress since I last checked in. Yay! Don't forget to take time for you. Have Jay sit with Sammy and you go for a walk outside. Sending good thoughts and prayers your way that the speed bumps are over!
Glad to hear things are starting to turn around. I hope you guys make it out to the floor, and that you all can get some good hours of sleep. Still praying for Sammy...and now for Drew, too.
Hope everything is going well. Let us know if we can help.
Posted by: khal at May 25, 2008 1:33 PM
Erika,
Hang in there, woman. Once they start recovering, get through that first "movement" (which takes awhile), it gets better a lot faster! Love you, as always, and thinking of you!
Shari, Bill, and boys
Posted by: Shari at May 25, 2008 2:06 PM
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Erika, Jason & Samson
It sounds like Sammy has made some good progress since I last checked in. Yay! Don't forget to take time for you. Have Jay sit with Sammy and you go for a walk outside. Sending good thoughts and prayers your way that the speed bumps are over!
Posted by: Andrea at May 25, 2008 12:29 PM