Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Sammy is now off the ventilator. He's a bit raspy and angry as all hell. He's also off the sedative, but since he's so worn out, we're hoping he will rest and sleep for the next hour or two. He had been tied down to the bed all day because he would wake and thrash, but we've untied one arm now and he seems a bit better with it now that he can put his arm up under his head (how he tends to sleep at home). He's still very out of it, but should be coming out of it over the next few hours. He does wake and freak out, and we're very limited in our ability to console him as he still has his central and arterial lines in, as well as EKG leads, chest tubes and other various things. When he wakes (in two hours), we might be able to start giving him small sips or licks of a popsicle, which is good, since he was mouthing for apple juice while he was still intubated.
Please continue to keep him in your thought and prayers - and a little extra our way as we deal with a very unhappy, confused, hurting Sammy wouldn't hurt either. We were told that today is the hardest day for the parents, and they weren't kidding. Thanks.
Previous entry :Fontan Post-Op Update
Next entry: Fontan Post-Op, Day 2
Been thinking about you guys all day!!
Great, great news! Continuing to send thoughts and prayers to you and Sammy. You are all so brave.
Posted by: Suz at May 22, 2008 4:07 PMYAY Sammy!
I hope they give you some juice soon so you'll be feeling more like yourself!
We love ya!
Posted by: Tricia at May 22, 2008 4:18 PMcongrats on the extubation. best wishes and hugs from KC. thinking of you.
Posted by: Michael, Patty, and Sophia at May 22, 2008 4:21 PMThinking about you guys! So glad that everything is moving in the right direction for Sammy.
Posted by: Amy at May 22, 2008 4:34 PMLots of prayers for all 3 of you, and your families...I have been thinking of you all day and checking for updates obsessively.
Posted by: Allie at May 22, 2008 4:50 PMI just wanted you to know that you guys have been in my thoughts and prayers. I'm glad things are going as they should. Here's to Sammy, what a strong little man.
Posted by: Jen Wright at May 22, 2008 4:50 PMI have not fogotten about you I just didn't know how to post..duh. I am praying for your Sammy and for you and your family to have strength. You are strong and so is he. I hope the next hours and days go better for all of you. You are in my thoughts and my prayers.
Jacquelyn & Jaiden Thole (future fontan buddie)
Posted by: Jacquelyn S Thole at May 22, 2008 4:58 PMat least the surgery is behind you now, I don't know how you're getting through this but I hope each day is better and sammy gets stronger ...he will, you all will! I can't believe he was mouthing for apple juice! Oh, how the kids love their juice : )
Posted by: jessie at May 22, 2008 5:17 PMat least the surgery is behind you now, I don't know how you're getting through this but I hope each day is better and sammy gets stronger ...he will, you all will! I can't believe he was mouthing for apple juice! Oh, how the kids love their juice : )
Posted by: jessie at May 22, 2008 5:17 PMWhoo Hoo! That is awesome that he has been extubated! It sounds like everything is going as perfect as it can and I can't wait to read that you all are back home, safe and sound. I will be thinking of you all and sending my most healing energy. I am holding Sammy close to my heart.
Kids know what they want and Sammy wanted his apple juice. So glad to hear that he has been extubated. Always prayers until Sammy is home with his mommy & daddy.
Love to all
yeah sammy! i miss you little monkey!
Posted by: kerry at May 22, 2008 6:47 PMHi Erika, I used to read your blog a lot and have just now caught up on all of the stuff going on with Sammy and your family. You are a strong and amazing woman and have a great family. I am so glad for you all this this is behind you. I will send extra prayers for a speedy recovery and healthy thoughts for everyone.
Posted by: Michelle at May 22, 2008 6:51 PMLots of grandma-grandpa-energy-prayers and love from Nora's grandma and grandpa to Sammmy, Jay and Erika. xoxo
Posted by: Randy Susan Meyers at May 22, 2008 9:33 PMFingers crossed. Glad things are going okay :)
Posted by: Chris at May 22, 2008 9:44 PMStill thinking about you, my friend. It's tough to see them in pain. It really is. Can't wait 'till you're through this but glad he flew through it like I thought he would.
(((HUGS))),
Shari
Been quietly checking in and praying. So glad to hear Sammy is off the vent. I know how hard today and the last few days have been. Praying that those lines start coming out and Sammy can move around and back into Mom and Dads arms. Will continue to quietly check in and be praying for a quick recovery and that Sammy will be home soon.
Posted by: Terri Grabb at May 23, 2008 5:18 AMHUGS to you all!! I'm so happy to see Sammy is doing well!!
Go, Buddy, Go!!!!
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This Hope for HLHS site belongs to Erika, Jason & Samson
So glad to hear he's off the ventilator! Keep the good news coming. We're thinking of you.
Posted by: Deb at May 22, 2008 4:01 PM