Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Thursday night, Sammy developed a fever, a runny nose and a cough. The cough seemed to be the worst of it, as it really hurt him (because of his chest) every time he coughed. The runny nose continued, but Friday morning he woke with a 101-102 fever that just wouldn't respond to Tylenol or Motrin. He was miserable - up there with the worst we saw him in the hospital. He didn't want to do much of anything except rest on the couch. He's still quite traumatized from the events of the last two weeks, so taking his temperature or giving him medicine would turn into complete meltdowns.
After finally talking to his cardiologist around noon, we packed up Sammy and took him to his pediatrician. The main concerns were infection and pneumonia, both not common - but not uncommon - after surgery. Our pediatrician sent us on our way back to Children's. I had several meltdowns along the way - I knew this meant more xrays and bloodwork for Sammy, and my heart broke having to put him through that again.
He handled things fairly well considering, and we even saw some smiles out of him when he went out on the CHB playground pre-bloodwork. The xray came back clear (a-freakin'-men, as that probably would have meant pneumonia), but the bloodwork came back with an elevated white cell count. Since his incision sites look clear - no sign of irritation or infection - Dr. Brown chalked it up to an ill-timed upper respiratory infection and sent us home with amoxicillin. Sammy's fever seemed to have broken while we were there, and he was in MUCH better spirits (after a trip to the hospital - who would have thought?), so we went out to dinner to avoid rush hour trying to get back home.
Hopefully (knock on wood), things will settle down and we can get to getting Sammy back to feeling happy and safe and healthy. Then mama and daddy can work on relaxing a bit finally, too!
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So glad that he didn't have an infection at the incision site or pneumonia - that would have been WAY worse! Hope the amoxicillin is working wonderers and that Sammy is feeling much better.
Posted by: Jen Wright at June 2, 2008 11:29 AMJust checking in on you little guy to see how you are feeling? I hope you, mommy and daddy have been able to catch up on much needed rest.
Laura (Grace's mommy)
Posted by: Laura at June 3, 2008 8:47 AMPoor guy having to go through all this stuff. Hope little Sammy is doing better now. We're sending our love.
Posted by: Bethany at June 3, 2008 10:46 PM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
Poor Sammy (and poor Mom and Dad, like you all haven't been through enough!).
I hope he is feeling better today!
Posted by: Allie at June 1, 2008 7:47 AM