Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
We'll be headed into Boston shortly for Sammy's heart cath. Plan looks like this:
- Hotel tonight, pre-cath workup (xray, bloodwork, EKG, who knows what else) tomorrow at 8:30am.
- Hopefully done with that in 4-5 hours. If Sammy's up to it (and we are too), we might make a trip to the Aquarium. My folks will make it into town around dinnertime.
- Thursday - cath day. We don't know a time yet. Apparently they will tell us that tomorrow. Cath, I believe, should take 3-5 hours.
- Thursday afternoon/evening will look one of two ways: if the cath was simply exploratory and they didn't have to do any work AND it was early enough that they can observe him for a few hours after he wakes up and everything's fine, they'll send us home. If the cath was later in the day, they had to do work, or they want to observe him longer, they'll keep us overnight.
- Either way, we should be back home Friday afternoon, universe willing.
I'm a wreck. Jay stayed home today to help get ready because I'm just so overwhelmed, I don't know where to begin.
Please keep Sammy (and us) in your thoughts the next few days. We could use the positive energy. Thanks.
Previous entry :Twenty-three months: chatterbox, the holidays and the cath
Next entry: Day 1, Pre-Fontan Cath Prep
Thinking of you today, tomorrow and always!
The Voss Family
My daughter Marianna recently had her pre fontan cath in sept. Everything went great with only minnimal coiling and her pressures were like 8 so we set a date of jan 10 to do fontan at the university of minnesota on jan 9 we went in for pre op and the surgeon came to see her and canceled the fontan on us and said she didn't believe Marianna would survive the procedure because she was too small she is 3 and wieghs 28pds. they then told us that she needed to gain 6 pds. in 90 days to have a chance to survive. she has since lost 2 pds. and we are taking her today to see a gi doc they will probibly admit her meanwhile I have sent records to a person in boston named sara I believe she is a nurse from cards who told me we may have a good chance to get a second opinion from the docs in boston so I'm trying to raise money for the trip. Please update
Posted by: gabreal at February 6, 2008 11:58 AMYou know that you all are always in our prayers. Let us know how everything goes... I am a phone call away! Lots of love and hugs! Faith
Posted by: faith kuykendall at February 6, 2008 2:22 PM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
List | Stats | Join|
This Hope for HLHS site belongs to Erika, Jason & Samson
Prayers are definitely with you guys, especially Sammy, these next few days.
Take lots of deep breaths!
Posted by: Megan at February 6, 2008 10:23 AM