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Pictures from Stage 1, the Norwood
Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.

Coping
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Fontan
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Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying

Amazing little boy
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis

posted by Mom on December 13, 2007
You have GOT to be kidding me.

Wow - has it really been three months since I last updated? As always, Munchkin man is keeping us busy. He's non-stop energy! And the talking - oh, the talking!

Cuteness, for our records and so you can all gag with the sappy mommy-ness of it all:

1. He's taken to forming 3, 4 and 5 word sentences now. His favorite thing is to ask, "Where did (fill in the blank) go? Maybe... over there? Maybe... in mamadada room? Maybe... downstairs?" He taps his little finger against his cheek while saying, "Maybe..." and then he pauses, as though he's giving real thought and consideration to where whatever it is might be.
   
2. Playing hide and seek, usually where he's the one hiding and we check the most ridiculous places for him ("Is Sammy in the... garbage can?") - and he answers with this tiny little, "Noooooooooo" from wherever he is.
   
3. "Oh no... toes! Not the toes!" He lifts his foot up and wiggles his toes at us, and we scream in faux-panic. He falls over in fits of giggles, all while trying to wiggle his toes at us and waiting for the screaming. Not sure why it's so funny, but it really, really is.
   
4. Blues Clues. Anything that's the shape of a pawprint or handprint is suddenly "Boo clue!" Happy Monster Band. Mickey, Minnie, Goofy, Donald. And unfortunately, STILL Dora. (Speaking of the Mickey crew, he had four figurines, one of each of them. Donald has been missing for close to a month and he asks for him every night. Just the other day, we think we got it out of him. Where Donald?, he asked. Then he tapped his finger on his cheek and said, "Maybe.... garbage?" He went through a garbage-can obsession for a week or so, and we fear that Donald Duck may have met an unfortunate fate.)
   
5. Labeling the color of everything and then telling us what it is not: Shirt is red - not blue. Red!
   
6. Playing "band" - insisting we put on Happy Monster Band, and then handing each of us an instrument so we can all play along. The cutest part? He counts off before we're allowed to play: "1, 2, 3..." and then we can start strumming the "gee" or banging the drums or playing the recorder (which, the moment he saw it, he called a "clar-net", something he probably picked up from all the Little Einsteins he used to watch).
   
7. Princess, our cat. Oh, the torture she puts up with! He loves laying on her and hugging her. He hasn't yet gotten that he should not, under any circumstances, try to ride her like a horse. It's just a matter of time before she takes a good swipe at him, I'm sure.
   
8. Presents. He may not "get" that Santa brings the presents (because so far, the mailman and his grandparents have brought them all), but man, he understands presents, opening presents, wanting presents, asking for presents, announcing that there are no more presents - you get the picture

In heart news: we're waiting on his cath date, which will be sometime in January. The thought of it makes me sick, so I'm making a strong effort not to think about it. Fontan still on track for May or June. I'm really hoping I go back into the denial phase again soon. It may not be healthy, but it's a lot easier than having to deal with thinking about what lies ahead.

I'm not going to end on that note, so I'll end on this: we are just a mere two months away from Sammy's second birthday. Everyday he amazes us with the things we were once afraid we may never get to see, and everyday we give thanks and gratitude for each moment we have with him, our little munkin wild man!

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Next entry: Twenty-three months: chatterbox, the holidays and the cath

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PLEASE contact us if you want to talk. Having others who have been through this there for us (even when we just needed to freak out!) has been so, so instrumental in coming to terms with what's we're up against.

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