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Pictures from Stage 1, the Norwood
Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.

Coping
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Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
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Surgery & Recovery
Surprises
Test Results
Worrying

Amazing little boy
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis

posted by Mom on May 13, 2007 Wow - I haven't updated in ages! Probably because we have a toddler running around like a madman these days. He definitely keeps us on our toes!

Since we last checked in:

• Sammy has mastered walking. And running. And using toys to climb to places he shouldn't be. And climbing over the gate and scooting up the stairs into his room before we (ok, ok, I) noticed he wasn't playing in the living room. Eeek.
  
• He started sleeping through the night. And then stopped. We're hoping he starts again soon, because this no-sleeping thing is really starting to suck after well over a year!
  
• We spent Mother's Day taking in Sammy's first Red Sox game. What a blast! He loved every last bit of it - the sights, the smells, the people, the sounds, all of it. He wouldn't sit still, so we spent most of the time walking around with him, but it was such a great day - definitely one of my favorites, ever.
  
• He LOVES cheese. And goldfish crackers. And broccoli - my god, does he love broccoli! He loves corn on the cob, salmon, green beans, pasta, hamburgers - you name it, he's probably tried it (and liked it!). He's even had Fenway sausage! Unfortunately, we think he's still having a hard time with whole milk, so he's on soy milk until late summer, when we'll try whole milk again.
  
• His weight took a considerable hit when he started walking. Apparently, he was too busy running around to stop to eat, and between his insane energy and a nasty cold, he lost about 8 ounces over a week or so. Thankfully, he managed to put it back on. We're still under the 20lb mark at 19lb 13oz, putting him in the 5th percentile. He's in the 50th, though, for height - long and lean... so not like his mama. ;-)
  
• He plays "Head, Shoulders, Knees and Toes" and will even point to his eyes, ears, nose and mouth!
  
• Now that he's got walking down and he's running around the house, his vocabulary is starting to really take off. For our records, because it'll be fun to look back at this, here's what he's saying: ba (ball, bubbles, butterfly), ma (balloon, monkey, max, cat - this actually makes sense, as our cat's name is Max), hat, clock, mama, dada, ga (goldfish, guitar), book, cah (car), Diego, Dah (Dora), Elmo, Boots, all done, down, cracker (usually drawn out, like craaaah...kah), baba, nini (good night), hi, bye, stah (stars), dah (door)

I think that's it for now. We've got Early Intervention coming in next week to do a check-in eval to make sure he's staying on track.

Thanks for checking in on him!

Previous entry :Miles for Miracles - Together in Heart.
Next entry: Early Intervention Assessment

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PLEASE contact us if you want to talk. Having others who have been through this there for us (even when we just needed to freak out!) has been so, so instrumental in coming to terms with what's we're up against.

Thank you! We've been amazed at the influx of wishes and prayers and positive energy sent our way, and we can't begin to express how much that strength and support means to us. Please take a moment and sign the guestbook.

Please check out the resources. We were overwhelmed with what's availabe on the Internet; hopefully this will narrow it down a little for you. Be sure to read up on all the babies who are doing well - there IS hope!

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