Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
I probably shouldn't have been so upset about it, but I was. There's such a concern around heart kids and their development - worries from sedation, intubation, lying in a hospital bed for as long as they had, not being able to do tummy time because of surgeries, etc. It's become so ingrained to focus so much on his development, and naturally, we want to make sure he's on track - and if he seems to be veering, we wanted to know as soon as possible so we can make sure he continues to develop appropriately.
Yeah. We had Early Intervention in this morning to do a full evaluation. Last time they were in, they gave us a mild Sensory Integration Disorder diagnosis. It seems as though the work we've been doing with Sammy is working and he's much better - and then they pretty much told us what we knew in our hearts to be true: our kid is a freakin' genius!
Ok, maybe not a genius - but he did score significantly higher than his age in all areas of development. They were floored at some of the things he was doing - things that put him in the 18 to 20 month range. He's adding new words every day and understanding even more.
The only area where he fell right on the mark for his age was his fine motor skills, which is interesting - he used to be ahead of his age for fine motor and delayed a bit for his gross motor (because he couldn't do tummy time for so long). Now - he's ahead for gross motor (we can't slow this kid down)!
I knew he wasn't delayed. Even better? They gave me new ideas for games and activities to fill up our days and keep Sammy learning and entertained. I'm looking forward to trying a bunch of them out.
As always, thanks for checking in on Sammy. We truly appreciate all the love, positive thoughts and prayers you send his way!
Previous entry :Fourteen month update
Next entry: Seventeen months
That picture is awesome! Sammy is beautiful. I'm so glad that he is doing so well.
Looking forward to reading more updates about him!
Posted by: Drew's Mom at June 8, 2007 8:23 PM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
Hi Erika,
I am so glad to see how well Sammy is doing! I worry about all the developmental stages as well. After Payton's surgery, she lost a lot of weight. It seemed that I followed her around with food. It is INCREDIBLE to me the way kids bounce back and just want to run and play as if nothing happened! The power of positive is an amazing thing. I just wanted to let you know that you are all in my thoughts no matter how busy things get and that I always wish you well!
Posted by: Kim Gray at June 4, 2007 8:38 PM