Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Look who's 5!
Feeling nostalgic
Thankful
Cardiology checkup Nov 2010
Amazing little boy
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
I had once asked my mom, who works with infants, toddlers & kindergarteners - at what point do kids slow down developmentally? Because really, how is it possible to keep changing and growing at this rate? Every so often I'll stop and look at all he's accomplished in say, the previous three days, and say to myself - wow, that was some growth spurt! I'm sure we'll have some downtime until the next one.
Ha!
In the past week, Sammy's gone from crawling to speed crawling to pulling himself up without hesitation to cruising. In two weeks, he's gotten three teeth, and we're waiting on the fourth. He's started truly babbling in his own little language with the addition of new combinations of sounds. He dances more often than not and knows that if there's no music playing, he just needs to look at one of us and wiggle and we'll flip on the Jack Johnson. And the strangest thing? He's truly conscious of the world around him. He's no longer a passive part of his surroundings. He climbs up on the things to explore. He sits and reads his books, quietly flipping pages and tracing the pictures with his tiny little pointer finger. (Even cuter? He "reads" the Cheerios box out loud to me. I'm not sure what's so appealing about that particular box, but he could spend forever analyzing it). He now realizes cause and effect. He wants to try to turn the light on and off. He waves and says, "Hi."
He knows things. It's wild.
I'm sure all parents are insanely proud when their kids start doing these things, but for each new step he takes, I'm in awe. This is a child we weren't sure we would have at nine months, a baby who we just expected would be developmentally delayed somehow - and look at him. He's truly amazing. (Knock on wood, please!)
I read somewhere recently something to this effect: I used to wonder in anger, "Why us? Why him?" Now I wonder in awe, "Why us? What did we do to deserve something so wonderful?" It sums up my feelings perfectly - every day I wonder what we did to deserve such a fantastically curious, happy little man little man in our lives.
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This Hope for HLHS site belongs to Erika, Jason & Samson
Wow. He is amazing! My son will be 9 months next week, and he is not pulling up yet, or cruising! What a wonder baby!
Posted by: Jenni at April 27, 2007 9:05 AM