Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
his first haircut the other night. He wasn't all too thrilled, and really, we probably shouldn't have tried to cut it while he was awake and all squirmy. It's a little short, sure, and a little choppy, but c'mon - he's 6 months old. Hardly a crisis in my eyes - and speaking of eyes, I can see his now again!
In the past two weeks, Sammy has learned to roll from his back to his tummy and then to his back... and to his tummy and to his back... and to his tummy and to his back... except that he's only figured out how to do it to his right, so he manages to get wedged in some random wall -
at which point he just lays there and babbles things like, "Dadadadadadada" and "nanananananana" - mixed in with screeches I'm CERTAIN you must hear at your own homes. The conversations in our house now sound like this:
Me: You rolled over! (clap, clap)
Sammy: Daddadadada - AAAAAAAAAAAAAAAAAAAAAAAAAH - nanandadadada - EEEEEEEEEEEEEEEEEEEEEEEEEEEEE - ngaganananadadda.
And he sits up - like, I can plop him down and he stays that way. And stands up now, too, with some propping. Throw in teething, and he's become the "I'm lying down so I want mama to hold me, but no, I don't want to be held, I want to sit up but now I'm sitting up - EEEEEEEEEEEEEEEE! - I want to stand up but - AHHHHHHHHHHHAAWAAAAAH nananadadadda - I want to roll over and WAAAAAAAAAAAAAAAAAH my teeth hurt - rollrollroll - wawwawaaaaa ddaadadadad oooof - a wall! Mamamamamamamama!" kid.
Man, I thought he took a lot of energy before... this is crazy! How I still have ten pounds of baby weight on me, I just don't understand. I should have thighs of steel and no more grandma-jiggle arms for all the energy this kid requires!
So he's doing really well. He's eating solids like a champ, gaining weight and essentially doing everything a six-month old baby should be doing (and then some, our little social butterfly!). Our Early Intervention specialist even said that we don't need her, and she dropped us down to monthly visits. We don't see the cardiologist again until October, and we aren't scheduled for the pediatrician until November, unless RSV season starts earlier and we have to head in for his Synagist shot.
Otherwise, we're living life with a very energetic (he won't nap more than 30 minutes!), very smiley (he LOVES to laugh), very happy little boy you'd never know has a heart condition. Knock on wood that it stays that way!
Previous entry :Post-op Checkup & Life post-Glenn
Next entry: Coming up on 7 months
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This Hope for HLHS site belongs to Erika, Jason & Samson
Way to keep Mommy busy Sammy! I'm sure she wouldn't have it any other way. I hope you are getting more tapes of those sweet sounds. Kids grow up too fast! Your hair looks fabulous! Love and prayers,
Lisa A. Spencer
Posted by: Lisa Spencer at September 7, 2006 2:39 PMGrand Rivers, KY
Programmer/Microsoft Office Specialist 2003 Master Certified
Wife to Daryl
Step-mom to Josh, 7, HLHS, doing great by the grace of God
Josh's site: http://www.geocities.com/darylandlisa/
Mom to Alissa, HH, 5.5, and Abbi, HH, 4!