Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Look who's 5!
Feeling nostalgic
Thankful
Cardiology checkup Nov 2010
Amazing little boy
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Sammy had his first real big trip - a four-hour trek to NY for Grandma & Grandpa's 30th Anniversary party. He did great, except for when he'd wake up in the truck and freak out because he couldn't see either one of us. The longest he's really ever been in a car was 45 minutes, so he was really out of sorts after almost three hours of staring out the back window.
You have a baby - in a bar?! He LOVED the ferry. We got there just moments before the 7pm was leaving, so they bumped us up from the 8 and snuck us on. The only tables still available were in the bar, but he wasn't fazed. (Mom, however, was keenly aware of how out-of-place her, "Are you going to eat all your nummies?" sounded amongst the Friday-night happy hour.) He spent an hour of the ride jumping up and down in our laps, lunging for everything and squealing with delight.
The visit was fantastic. Aside from Mama and Daddy thoroughly enjoying a party at the vineyard, Sammy met a lot of people - like, 50 of them! - who have been waiting for months to meet him, including his Aunt Danielle and three-year old cousin Jonah. It took a little while for Jonah to warm up to him, but once he did, he played and gave him kisses and all things adorable. Sammy also got to meet aunts and uncles and family friends - needless to say, he was smothered with love and hugs and cheek-pinching. Oh man, the cheek-pinching!
The little man turned 7 months yesterday. He's finally broken the 16 pound mark, clocking in at 16lb 1oz last Thursday. His oxygen saturations (sats) are hanging in the high 80s and low 90s, which is fantastic. My favorite nicknames are Pumpkinhead, Pumpkinbutt and Munkinman, and I make up silly little songs like, "Mama's got the nummies - the nummies that go in the tummies!" and "Munkin punkin poodle and pie, kissed the girls and made them cry. When the girls came out to play, Munkin punkin kissed them again - yay!". He's hitting almost every milestone, even getting a few of them early. He's babbling and mixing up all sorts of consonants and vowels. He loves bananas, sweet potatoes and peas. Still no teeth, though he's definitely teething. He sits up and plays a LOT, though still not much in the way of crawling. He seems fairly uninterested in it, prefering to sit or stand. He doesn't like napping and still doesn't sleep through the night, waking once or twice to eat. He LOVES our cat, Princess, as well as have some strange love of lights and fans. He picks up tiny objects, sending mama into a babyproofing tizzy. He plays peekaboo on his own and looks for objects when he throws them. He's taken baths in the big bath. He loves lunging for toys and getting his face in the water... so we got the okay to start him in swimming lessons! Hopefully we'll find a class with his friends Emily (who just turned one) and his little girlfriend Charlotte (who is about five weeks younger than he is).
We have a cardiologist appointment on October 3rd, and a pediatrician visit at 9 months, though I'm sure we'll be there sooner for a flu shot and his Synagist (RSV shot). Otherwise, we're truckin' along with one happy little monkey!
Previous entry :Coming up on 7 months
Next entry: Eight months old!
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This Hope for HLHS site belongs to Erika, Jason & Samson
Big smiles for Sammy & his Family! I'm so glad to hear that he is doing so well...and progressing mightily, I might add. Sitting up, bathing, EATING!!! Very happy for you. Michaela, (our 2.5 YO) has had a rough (from a normal's standpoint) summer as most of it has been battling colds over and over again. It makes her eyes and mouth turn a not-so-lovely shade of blue and her still-not-healed g-tube site glow with a pink ferocity. She will get her Fontan this January methinks, which we hope with take care of the "Ted Turners", among other things. Our prayers go with you. Life is beautiful, aint' it?
Posted by: Michael Kost at October 13, 2006 6:28 PM