Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Let's see what's been going on:
Sammy's thoroughly enjoyed bananas and sweet potatoes. He's went back and forth on the pears, and the jury's out on the prunes. (Mama hopes he comes around to the prunes, because quite frankly, 2 1/2 days between poops just doesn't sound comfortable!) He much prefers to feed himself, and he's taken to scooping up his bottle and rolling it around until he figures out where the nipple is, and then spends the next few moments chomping down on it.
He smiles all the time. He laughs and carries on conversations with anything and anyone. He truly is the happiest baby I've ever met. We're fairly certain that he's teething, as he leaves behind huge long globs of drool wherever he goes while chewing on whatever he can grab and shove in his mouth. He's enjoying some tummy time again, and throws a bit of a hissy fit if we take him out of his Jump-a-roo or Exersaucer.
He had his post-op check-up today, and weighed in at a whopping 14lb, 3oz. We're just three weeks and 5oz from doubling his weight by his six month birthday. (Holy cow, how is he almost six months old already!?!?) His oxygen saturations are hanging in the mid-80s, and his heartrate hasn't dropped below mid-70s (and that's while he's sleeping). They dropped his Lasix down a little bit, and he's still on Captopril, baby aspirin and Zantac. Dr. Brown was very happy with his progress and gave us the okay to travel with him. (He even said Sammy could fly! Not that mama's getting on a plane anytime soon.) We've got two months until our next cardiologist appointment. TWO MONTHS! Whoo hoo!
So, here's to a mellow two months. Knock on wood!
Previous entry :And we're outta here!
Next entry: Six month update
Hi again Sammy! So glad you're loving the baby food. I don't blame you about the prunes! YUCK! I'll keep checking in and praying for you!
Lisa Spencer, Step-mom to Josh, 7, HLHS
http://geocities.com/darylandlisa
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This Hope for HLHS site belongs to Erika, Jason & Samson
Whoo Hoo!!! Glad to hear the little monkey has taken to his bananas, but frankly - was it ever really in doubt?
Things are as ridiculous here as ever. They fluctuate between droll and psychotic. I have ex's that never really become ex's because they NEVER GO AWAY and a father that just can't maintain one personality per conversation. Other than things are spectacular. ;-) When you are in a place to receive visitors, I would love to come see the monkey up close! Let me know. Much love.
Posted by: emily at August 8, 2006 10:39 PM