Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
I woke up this morning to the munchkin staring at SportsCenter. He threw a hissy fit when I moved the tv, too!
He had a good night (knock on wood). He got some more morphine around 4, but hasn't had any since. His blood pressures are still low (yay! though we'll see what happens when they wean him off the isuprel) and he's holding high 70s sats without supplemental oxygen. His surgeon came by, and the general consensus seems to be that his episode last night was "impressive" - he talked about how ill Sammy got & how fast that happened - and then how fast he bounced back. He also said that they don't usually see bronchial spasms like that in kids post-Glenn, so he's not sure what precipitated it.
Sammy coughed up some nastiness this morning, which is just what we want. Get that gunk out of his lungs! He also took some water by bottle - we couldn't figure out what the fussiness was, and it turned out he just wanted something to eat! Yay! He was playing a bit and even smiled his huge grin. He's napping now on just Tylenol - the lower blood pressure means less pressure in his head when he freaks out, which means his headache doesn't go through the roof, causing more freak out and an awful cycle. This is happy.
So today - we want uneventful. Lots of coughing and gunk-releasing. Stable blood pressures and good heartrate when they take him off the pacemaker (otherwise talk of putting in a pacemaker picks up a bit). Uneventful. So send some boring, smiley, playing-with-the-rattle vibes our way if you can. Thanks. :-)
Previous entry :Not fun - post-Glenn, night 2
Next entry: Post-Glenn, Day 3
I have been thinking of you and praying...Sammy looks so good in this most recent picture. He looks like he is having a good moment there. I hope that someday we will meet him :) I greatly admire your strength...He is truly a beautiful boy.
Kim
So great to see him smiling there. When people pray together, powerful things happpen. You guys are always in my prayers.
Posted by: shamira at July 24, 2006 11:08 AM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
Hi Er,
I'm finally at a point where I can write to you and tell you that I have been sending all the vibes I can muster your way. I have a really hard time reading the stories about Sammy's surgery because my own sister is pregnant right now and I'm trying to stay positive and upbeat and optimistic for a healthy baby for her. But, I am reading and praying and sending good energy to Sammy and to you and Jay. I met with a kinesiologist (sp?) this week and had a session complete with muscle testing and adjustments to my meridians - it was very....whole. I'm really just learning about the power of the energy in our bodies. So, as I said, I'm sending good energy.
Namaste,
Posted by: Em at July 22, 2006 2:57 PMEm