Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Extubated!!!!
Jay stayed with him last night and I stayed at the hotel - the first night in months that I didn't have the surgery hanging over me. I was so exhausted, I slept through Jay's phone call at midnight to say goodnight - and I had the phone right next to my head!
Jay called around 6 this morning to tell me that they had extubated him. When I got here, I was able to see that sweet little face! He's starting to fuss more, though they've got him on morphine and tylenol - last night they gave him , chloral hydrate which should have lasted about four hours. Him? Lasted two. He's fighting the sedation, just like last time. :-) He's bringing his hands to his mouth - a clear sign that he's awake enough to be hungry! Our nurse, Taury (whom we ADORE - we had her last time), said we could try to give him some water around 10. Whoo hoo!
They expect to remove his lines (yay, yay, yay - I HATE them), pacemaker wires and the drainage tube from his chest sometime today. At that point, he'll be left with his IVs - one is his hand, one in his foot. He's still puffy, but not nearly as swollen as yesterday.
(And... I just overheard that we're headed to a private room - still in the CICU, but we'll have a door!)
His blood pressure is still really high, and since this surgery redirected the blood flow to the top half of his body, Jay said he turns purple when he really fusses. They increased the nipride, but his body needs some time to adjust to the difference in pressure. He'll go home on another medication to help with that - most likely captopril. (He's currently on baby aspirin, lasix and zantac at home.)
We'll keep updating as things progress, but we're hoping the next few days are pretty quiet, just getting him comfortable, awake and back to normal.
As always, thank you so much for your support. Your comments, thoughts, prayers and love truly do carry us through this all.
Previous entry :He's out!
Next entry: Post-Glenn, Day 1, part 2
good-good, Good-Good, GREAT!!!
just checking in. again : )
Posted by: jessie at July 20, 2006 12:59 PMYes....So glad to hear all is going good.Samson is a fighter.I will keep checking on updates.Kisses to all
Posted by: Grandma Mary at July 20, 2006 1:40 PMGlad to hear things are going well. Best wishes to all from the team at MHD.
Posted by: Mass Highway team at July 20, 2006 9:48 PMSo happy to hear that thigs are ging well. You guys will continously be in my prayers
Posted by: Shamira at July 20, 2006 11:28 PM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
I am glad to hear things are going well. Sammy is such an amazing little boy. You guys have been in my thoughts and prayers.
Posted by: Colleen at July 20, 2006 10:23 AM