Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
So we're still trucking along. His heartrate is staying in the 70-80-90 range, which is making us all happy. I asked his cardiologist - if we didn't have the heartrate concern - based on his recovery from the Glenn procedure alone, would we be in step-down by now? He said we would be, which means that he's recovered nicely from the surgery. Yay!
His cardiologist also said that he wouldn't do a pacemaker unless it was absolutely, absolutely necessary, and that he'd rather watch him for a while to make sure the heartrate wasn't going to be an issue. Apparently, once someone's got a pacer in, it's pretty much a pacer-for-life deal, so he doesn't take a decision like this lightly. His surgeon agrees... so while we're not out of the pacemaker woods yet, we're a few steps back from having one put in than we were a day or two ago. Yay #2!
AND... if Sammy continues with these same numbers through the night and early morning, we could be moved to step-down tomorrow evening. Yay #3!!!
AND... in a bit of normalcy, Sammy had a complete blowout with some of the nastiest, nastiest poop. While I was holding him. BLECH. So he got a bath, which was much needed. We also got to hold him quite a bit today, which was really, really nice. He's talking a bit more now, too - working his way back to our little boy.
Knock on wood. Again, for good luck. And again for not tempting the fates by wishing for good luck. Hell, just spend the next few minutes knocking on wood, okay? Thanks. :-)
Previous entry :Post-Glenn, Day 4
Next entry: And the lines are OUT!
Hi Erika & Jay,
I'm still checking on you guys and pulling hard for Sammy! He is SOOO incredibly cute and I'm glad to see he's on the upswing now. Hope you two are doing well and are moved on over to 8East tomorrow!
All the best,
Angela VanDerwerken
PS: Say hi to Taury from us--she's my fave too!
Posted by: Angela at July 24, 2006 12:22 AMThinking of you all. Glad heart rate is better.Ruth and Gil
Posted by: ruth and gilrinards@rinard.net at July 24, 2006 6:36 AM(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
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This Hope for HLHS site belongs to Erika, Jason & Samson
We are so happy to hear all the good news! Can't wait to see Sammy again, home safe and sound!
Posted by: Cris and Dina at July 23, 2006 9:27 PM