Pictures from Stage 2, the Glenn
Pictures from Stage 3, the Fontan Please note - these pictures, for the most part, are "safe". If you're interested in post-op pictures from the Norwood, please email us at us@babysamson.com for access.
Doctor Visits
Fontan
General Updates
Glenn
Life with Sammy
Norwood
Other HLHS families
Support
Surgery & Recovery
Surprises
Test Results
Worrying
Four years old
Happy holidays!
Home, home, home!
Recovery
Unexpected Open Heart Surgery
Fenestration-closing cath
One year post-Fontan!
NSTAR's Walk for Children's Hospital Boston
3 years old & cardiology visit
Wild Man
Update and Santa
Blue episodes and a cardiology appointment today
Ellie's Fontan
Post-Fontan Cardiology Visit
"You've gotta just let him be."
Sammy's Recovery from the Fontan
Life Post-Fontan
Bump from home
We are home!
Fontanized - Day 6 Update
Day 4 Post-Op 2:30pm Update
Fontanized, Day 4 Post-Op
Bump #2 - Pneumothorax
Little Bump
Fontan Post-Op, Day 2
Extubated!
Fontan Post-Op Update
Fontan Day
Fontan Pre-op Done
Checking in
Update, 2 years old, Fontan date, more
And we're free!
Pre-Fontan cath DONE.
Cath Day
Day 1, Pre-Fontan Cath Prep
Pre-Fontan cath
Twenty-three months: chatterbox, the holidays and the cath
Twenty-two months
Cardiology visit
Eighteen months
Seventeen months
Early Intervention Assessment
Fourteen month update
Miles for Miracles - Together in Heart.
Sedated echo
Look who's one!
One year.
11 1/2 months old!
Almost 10 months old!
Cardiologist Visit
Just about nine months!
Who is this kid, and what did you do with my baby?
Eight months old!
7 months old!
Coming up on 7 months
Six month update
Post-op Checkup & Life post-Glenn
And we're outta here!
Waiting to go home & a few firsts...
Truckin' along
Step-Down!
And the lines are OUT!
Happy updates
Post-Glenn, Day 4
Post-Glenn, Day 3
Post-Glenn, Post-Bronchial Spams, Day 3
Not fun - post-Glenn, night 2
Post-Glenn, Day 2
Post-Glenn, Day 2 - morning
Post-Glenn, Day 1, part 2
Post-Glenn, Day 1
He's out!
In surgery - updates
the wait
The night before the Glenn
Preparing for the Glenn
Update & Surgery
Milk Allergy Fun
Chatty Sammy
Cath Hospitalization
Catheterization
Gasmonster!
Teaching Sammy about the world.
Miles for Miracles
First bath!
Gassy infant prodigy
Rockin' Sammy
Revelations about mamahood
Babymoon, Part 2
Babymoon, Part 1
Home Sweet Home
Discharged!
Rumor has it...
Stepdown, Day 2
We have step down!
Today was pretty mellow
No step-down for you
Time to buy stock in St. Joseph's
One step closer
Extubation!
One step at a time
Done with the closing
Chest Closing
Birth story
Chest Closing & Mama in Triage
Recovery
Out of Surgery
Welcome, Sammy!
Samson Arrives
Labor update
Of due dates and inductions
Baby Grace
Snow baby?
Welcome to the jungle
Getting closer...
37 1/2 week update
Fighting the bad thoughts
Getting bigger - and closer!
31 weeks with Dr. Brown, CHB
31 Week Appt. w/ Dr. Johnson
One big monkey!
Starting to Get Ready
30 Weeks and Full-blown Panic
Silly Pregnant Lady
27 Week Visit
Fears
EFO Shout Out
Weird Pains & an Early Morning Trip to the Hospital
Fetal Echo at Boston Children's Hospital
DiGeorge's - Negative!
Evil Genetics Counselor
Full amnio results
22 weeks and Life Now
Pediatric Cardiologist
Redefining Normal
FISH Results
Embarrassing the poor boy already
The Baby's Name
Post-Amnio
Pre-amnio, Baby痴 name riddle
Reiki energy, and not being alone
Friends and Tarzan
Trying to get through the day
The diagnosis
Trying to stay positive
Pre-Diagnosis
Revelations about mamahood:
The fact that the diapers you love are no longer being made will suddenly become the biggest crisis in the world. And since your world doesn't extend much beyond your front door these days, you can legitimately say, this is the biggest crisis in the world.
Babies don't care about morning breath, coffee breath, the fact that you haven't showered or that you can't sing to save your life. In fact, these are the very things that make your baby recognize you from all the other mamas in the world - or at least you can tell yourself this when you realize you haven't washed your hair in four days and your shirt has three different feedings of dried spit-up on it.
You will not bat an eye at spending a crazy amount of money on the latest, award-winning mentally-stimulating mobile or at handing over even more money to some stranger on the other side of the country for the very last batch of newborn-sized Seventh Generation diapers in the world - but you will spend five minutes in the yogurt aisle trying to decide whether or not it's okay to pay an extra thirty cents for the soy yogurt instead of the regular yogurt for yourself.
You will need to occasionally force yourself to call your child by his given name, lest he grow up and fill in his college applications with "Master Doodle Muffin the first".
Things I will not do: ask my baby permission to touch him, like the woman on the informative "infant massage" TV show said we should do. He's four weeks old, what's he going to say? Sure, mama, and could you warm up the lotion first this time? And while I cursed about the silly "must-have" items I read about before he was born, let me tell you this - I am all over the baby-wipe warmer. It sounds silly, but it will break your heart to hear the curdling scream when you rub cold wipes on your baby's bum at three in the morning - not to mention possibly wake him up, thus increasing the amount of time before you get to go back to sleep. I'm just sayin'.
It's taken me two hours to write this out, and he's crying again, which means at least another hour before I can hit that post button. Revelation: it will take you fifteen times longer to do any normal things anymore - but really, you won't care one single bit.
Previous entry :Babymoon, Part 2
Next entry: Rockin' Sammy
(If you haven't left a comment here before, you may need to be approved by the site owner before your comment will appear. Until then, it won't appear on the entry. Thanks for waiting.)
List | Stats | Join|
This Hope for HLHS site belongs to Erika, Jason & Samson