baby samson

Welcome to BabySamson.com!

We created this site for a few reasons.

To keep our family and friends updated on Samson's HLHS.
To act as a resource for other parents of children with HLHS.
To calm Mommy's nerves, give her a sense of control and keep her focused, positive - and busy!

On Columbus Day, 2005, at 20 weeks pregnant, we learned that our little boy had Hypoplastic Left Heart Syndrome. HLHS is a combination of different conditions, but essentially, the left side of the heart doesn't develop the way it should. This is the side of the heart that pushes the "good" blood back to the body. In years past, these "blue babies" would not survive a few days after birth. However, new technology is constantly developing, giving these babies a good shot at life. That's what we're hoping for!

Upcoming appointments

Sammy is now post-Fontan! Sammy's Fontan was performed at Children's Hospital Boston on May 21, 2008 by Dr. Fynn-Thompson.

Sammy's Fontan is fenestrated, which means that there is still a hole in his heart that will need to be closed by cath sometime in the next year or so. He has a cardiology appointment on March 3, 2009.

The Quick Update

There seem to be a whole slew of recently diagnosed HLHSers coming through, so if you're a new heart mom or dad, welcome! We know all too well the rollercoaster ride you're on, and we hope that you can find some comfort and hope through our son's story.

We are currently POST-FONTAN! Sammy had his Fontan at Children's Hospital Boston on May 21st and came home one week later. Otherwise, Sammy is about as typical a toddler as you're going to get - and for this, we are so, so grateful.

Please feel free to email us - we're always up for sharing our story and answering your questions the best we can.

See the blog for more in-depth updates.

If you've recently received an HLHS diagnosis

PLEASE contact us if you want to talk. Having others who have been through this there for us (even when we just needed to freak out!) has been so, so instrumental in coming to terms with what's we're up against.

If you're here because you wanted to show love and support

Thank you! We've been amazed at the influx of wishes and prayers and positive energy sent our way, and we can't begin to express how much that strength and support means to us. Please take a moment and sign the guestbook.

If you're looking for info on HLHS

Please check out the resources. We were overwhelmed with what's availabe on the Internet; hopefully this will narrow it down a little for you. Be sure to read up on all the babies who are doing well - there IS hope!

Hope for children with Hypoplastic Left Heart Syndrome
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This Hope for HLHS site belongs to Erika, Jason & Samson

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