Welcome to BabySamson.com!

We created this site for a few reasons.

  1. To keep our family and friends updated on Samson's HLHS.
  2. To act as a resource for other parents of children with HLHS.
  3. To calm Mommy's nerves, give her a sense of control and keep her focused, positive - and busy!

On Columbus Day, 2005, at 20 weeks pregnant, we learned that our little boy had Hypoplastic Left Heart Syndrome. HLHS is a combination of different conditions, but essentially, the left side of the heart doesn't develop the way it should. This is the side of the heart that pushes the "good" blood back to the body. In years past, these "blue babies" would not survive a few days after birth. However, new technology is constantly developing, giving these babies a good shot at life. That's what we're hoping for!

Upcoming appointments

Sammy is now post-Fontan! Sammy's Fontan was performed at Children's Hospital Boston on May 21, 2008 by Dr. Fynn-Thompson.

Sammy had some (very rare) complications during his fenestration closing in September 2009, and as a result, had his fourth open-heart surgery. He did very well and has been running wild (with sats in the mid-90s!) since!

He will have another cardiology appointment, with an echo, in November 2011.

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Holy wow, I've been a slacker with the updates! Sammy is in first grade and loving it! He turned 7 in February and is still into all things boy - Legos, Star Wars, battles, Ninjago. He also loves, loves, loves math and reading! He is doing very well in school. In February, he went to Disney and was cleared for ALL rides. He is an adrenaline junkie and LOVED the roller coasters, as you can see in the picture above. It's not the best, as grandma was turning around to catch the moment - but you can see the sheer joy in his face. :-)

Thanks for stopping by! And of course, if you're here because you're newly diagnosed, please don't hesitate to email us with questions or just to ramble. We get what it means to be HLHS parents!

 
If you've recently received an HLHS diagnosis
PLEASE contact us if you want to talk. Having others who have been through this there for us (even when we just needed to freak out!) has been so, so instrumental in coming to terms with what's we're up against.

If you're here because you wanted to show love and support
Thank you! We've been amazed at the influx of wishes and prayers and positive energy sent our way, and we can't begin to express how much that strength and support means to us. Please take a moment and sign the guestbook.

If you're looking for info on HLHS
Please check out the resources. We were overwhelmed with what's availabe on the Internet; hopefully this will narrow it down a little for you. Be sure to read up on all the babies who are doing well - there IS hope!

Hope for children with Hypoplastic Left Heart Syndrome
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This Hope for HLHS site belongs to Erika, Jason & Samson

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