- To keep our family and friends updated on Samson's HLHS.
- To act as a resource for other parents of children with HLHS.
- To calm Mommy's nerves, give her a sense of control and keep her focused, positive - and busy!
On Columbus Day, 2005, at 20 weeks pregnant, we learned that our little boy had Hypoplastic Left Heart Syndrome. HLHS is a combination of different conditions, but essentially, the left side of the heart doesn't develop the way it should. This is the side of the heart that pushes the "good" blood back to the body. In years past, these "blue babies" would not survive a few days after birth. However, new technology is constantly developing, giving these babies a good shot at life. That's what we're hoping for!
Sammy had some (very rare) complications during his fenestration closing in September 2009, and as a result, had his fourth open-heart surgery. He did very well and has been running wild (with sats in the mid-90s!) since!
He will have another cardiology appointment, with an echo, in November 2011.